TY - JOUR
T1 - Women's experiences in a community-based participatory research randomized controlled trial
AU - Kneipp, Shawn M.
AU - Lutz, Barbara J.
AU - Levonian, Catherine
AU - Cook, Christa
AU - Hamilton, Jill B.
AU - Roberson, Dawne
N1 - Funding Information:
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The first author received a grant from the National Institutes of Health and the National Institute of Nursing Research (NIH/NINR Grant # 5R01NR009406), which funded the research. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
PY - 2013/6
Y1 - 2013/6
N2 - Integrating community-based participatory research (CBPR) into traditional study designs can enhance outcomes in studies with disadvantaged groups. Little is known, however, about study participants' experiences with these approaches, the underlying processes involved in creating more positive outcomes, and whether undesirable effects on study outcomes occur simultaneously. We conducted focus group interviews with 31 disadvantaged women who participated in a CBPR-driven randomized controlled trial (RCT) both to explore their study experiences and to obtain their interpretations of select study findings. Using dimensional analysis, we found the tailored health questionnaire, treatment by study staff members, and RCT participants' understandings of and responses to randomization were salient to what women described as transformative experiences that occurred over the course of the RCT. These findings have implications for understanding how CBPR and non-CBPR aspects of interventions and study designs have the potential to affect both process and endpoint study outcomes.
AB - Integrating community-based participatory research (CBPR) into traditional study designs can enhance outcomes in studies with disadvantaged groups. Little is known, however, about study participants' experiences with these approaches, the underlying processes involved in creating more positive outcomes, and whether undesirable effects on study outcomes occur simultaneously. We conducted focus group interviews with 31 disadvantaged women who participated in a CBPR-driven randomized controlled trial (RCT) both to explore their study experiences and to obtain their interpretations of select study findings. Using dimensional analysis, we found the tailored health questionnaire, treatment by study staff members, and RCT participants' understandings of and responses to randomization were salient to what women described as transformative experiences that occurred over the course of the RCT. These findings have implications for understanding how CBPR and non-CBPR aspects of interventions and study designs have the potential to affect both process and endpoint study outcomes.
KW - dimensional analysis
KW - focus groups
KW - health outcomes
KW - intervention programs
KW - longitudinal studies
KW - marginalized populations
KW - participatory action research (PAR)
UR - http://www.scopus.com/inward/record.url?scp=84876793848&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84876793848&partnerID=8YFLogxK
U2 - 10.1177/1049732313483924
DO - 10.1177/1049732313483924
M3 - Article
C2 - 23567297
AN - SCOPUS:84876793848
SN - 1049-7323
VL - 23
SP - 847
EP - 860
JO - Qualitative Health Research
JF - Qualitative Health Research
IS - 6
ER -