Will it make a difference if I show up and share? A citizens' perspective on improving public involvement processes for health system decision-making

Julia Abelson, Pierre Gerlier Forest, John Eyles, Ann Casebeer, Gail Mackean, Francois Pierre Gauvin, Denise Kouri, Elizabeth Martin, Mike Pennock, Patricia Smith

Research output: Contribution to journalArticlepeer-review

40 Scopus citations


Introduction: Health policy decision-makers are grappling with increasingly complex and ethically controversial decisions at a time when citizens are demanding more involvement in these decision processes. Objectives: To assess and revise a set of guiding principles for the design of public involvement processes generated from a synthesis of public participation design and evaluation frameworks that can be used to inform the design and evaluation of future public participation processes in the health sector. Methods: Six focus groups held in five Canadian provinces comprising citizens with considerable experience of public participation processes. Results and discussion: Our findings suggest that citizen participants are highly critical of, and discerning about, their public participation experiences. Yet, they are optimistic and determined to contribute in meaningful ways to future public policy processes. They are clear about where improvements are needed and give top priority to what information is shared, and how, among participants and decision-makers. The views of experienced citizens mapped well onto most of the prior principles of public involvement with a few modifications. First, participants gave greater emphasis to the content and balance of information for the purposes of building trust and credibility between citizens and decision-makers. Second, participants viewed themselves, as well as decision-makers, as sources of information to be shared through the consultation process. Finally, participants stressed the importance of getting the information and communication principles right over addressing all other principles.

Original languageEnglish (US)
Pages (from-to)205-212
Number of pages8
JournalJournal of Health Services Research and Policy
Issue number4
StatePublished - Oct 2004
Externally publishedYes

ASJC Scopus subject areas

  • Health Policy
  • Public Health, Environmental and Occupational Health


Dive into the research topics of 'Will it make a difference if I show up and share? A citizens' perspective on improving public involvement processes for health system decision-making'. Together they form a unique fingerprint.

Cite this