TY - JOUR
T1 - Web-based survey data collection with peer support and advocacy organizations
T2 - Implications of participatory methods
AU - Ostrow, Laysha
AU - Penney, Darby
AU - Stuart, Elizabeth
AU - Leaf, Phillip J.
N1 - Funding Information:
This study was funded by grant T32MH019545 from the National Institute of Mental Health and a grant from the Johns Hopkins Center for Mental Health Initiatives. The authors thank members of the consensus panel: Dan Fisher, Lauren Spiro, Darby Penney, Sera Davidow, and Christa Burkett. The authors also thank research assistants John Otenasek, Cheryl Gottlieb, Bob Stockfield, and Cathy Levin.
Publisher Copyright:
© 2017 Johns Hopkins University Press.
PY - 2017/3/1
Y1 - 2017/3/1
N2 - Background: The 2012 National Survey of Peer-Run Organizations is one of the first to survey a nationally representative sample of mental health peer-run organizations, nonprofit venues for support and advocacy which are defined by people with psychiatric histories being in positions of authority and control. Objectives: This paper describes data collection methods and demonstrates how participatory strategies to involve people with psychiatric histories intersected with Internet research to achieve study aims. Methods: People with psychiatric histories were involved in designing and implementing a web-based survey to collect data on peer-run organizations’ operations and views on national policy. Participatory approaches were used throughout design, data collection analysis, and dissemination. Conclusions: The extensive involvement of people with psychiatric histories in project design and implementation were important strategies that contributed to this study’s success.
AB - Background: The 2012 National Survey of Peer-Run Organizations is one of the first to survey a nationally representative sample of mental health peer-run organizations, nonprofit venues for support and advocacy which are defined by people with psychiatric histories being in positions of authority and control. Objectives: This paper describes data collection methods and demonstrates how participatory strategies to involve people with psychiatric histories intersected with Internet research to achieve study aims. Methods: People with psychiatric histories were involved in designing and implementing a web-based survey to collect data on peer-run organizations’ operations and views on national policy. Participatory approaches were used throughout design, data collection analysis, and dissemination. Conclusions: The extensive involvement of people with psychiatric histories in project design and implementation were important strategies that contributed to this study’s success.
KW - Community-based participatory research
KW - Health care economics and organizations
KW - Health care surveys
KW - Mental health services
KW - Organizations
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U2 - 10.1353/cpr.2017.0006
DO - 10.1353/cpr.2017.0006
M3 - Article
C2 - 28603150
AN - SCOPUS:85020444832
SN - 1557-0541
VL - 11
SP - 45
EP - 52
JO - Progress in Community Health Partnerships: Research, Education, and Action
JF - Progress in Community Health Partnerships: Research, Education, and Action
IS - 1
ER -