TY - JOUR
T1 - Trust in Community-Engaged Research Partnerships
T2 - A Methodological Overview of Designing a Multisite Clinical and Translational Science Awards (CTSA) Initiative
AU - Kim, Mimi M.
AU - Cheney, Ann
AU - Black, Anita
AU - Thorpe, Roland J.
AU - Cene, Crystal Wiley
AU - Dave, Guarav J.
AU - Schaal, Jennifer
AU - Vassar, Stefanie
AU - Ruktanonchai, Corrine
AU - Frerichs, Leah
AU - Young, Tiffany
AU - Jones, Jennifer
AU - Burke, Jessica
AU - Varma, Deepthi
AU - Striley, Catherine
AU - Cottler, Linda
AU - Brown, Arleen
AU - Sullivan, Greer
AU - Corbie-Smith, Giselle
N1 - Publisher Copyright:
© The Author(s) 2019.
PY - 2020/9/1
Y1 - 2020/9/1
N2 - Community-engaged research (CEnR) builds on the strengths of the Clinical and Translational Science Awards (CTSA) framework to address health in underserved and minority communities. There is a paucity of studies that identify the process from which trust develops in CEnR partnerships. This study responds to the need for empirical investigation of building and maintaining trust from a multistakeholder perspective. We conducted a multi-institutional pilot study using concept mapping with to better understand how trust, a critical outcome of CEnR partnerships, can act as “social capital.” Concept mapping was used to collect data from the three stakeholder groups: community, health-care, and academic research partners across three CTSAs. Concept mapping is a mixed-methods approach that allows participants to brainstorm and identify factors that contribute to a concept and describe ways in which those factors relate to each other. This study offers important insights on developing an initial set of trust measures that can be used across CTSAs to understand differences and similarities in conceptualization of trust among key stakeholder groups, track changes in public trust in research, identify both positive and negative aspects of trust, identify characteristics that maintain trust, and inform the direction for future research.
AB - Community-engaged research (CEnR) builds on the strengths of the Clinical and Translational Science Awards (CTSA) framework to address health in underserved and minority communities. There is a paucity of studies that identify the process from which trust develops in CEnR partnerships. This study responds to the need for empirical investigation of building and maintaining trust from a multistakeholder perspective. We conducted a multi-institutional pilot study using concept mapping with to better understand how trust, a critical outcome of CEnR partnerships, can act as “social capital.” Concept mapping was used to collect data from the three stakeholder groups: community, health-care, and academic research partners across three CTSAs. Concept mapping is a mixed-methods approach that allows participants to brainstorm and identify factors that contribute to a concept and describe ways in which those factors relate to each other. This study offers important insights on developing an initial set of trust measures that can be used across CTSAs to understand differences and similarities in conceptualization of trust among key stakeholder groups, track changes in public trust in research, identify both positive and negative aspects of trust, identify characteristics that maintain trust, and inform the direction for future research.
KW - CTSA
KW - community research partners
KW - community-engaged research
KW - translational science
KW - trust
UR - http://www.scopus.com/inward/record.url?scp=85059957298&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85059957298&partnerID=8YFLogxK
U2 - 10.1177/0163278718819719
DO - 10.1177/0163278718819719
M3 - Article
C2 - 30612444
AN - SCOPUS:85059957298
SN - 0163-2787
VL - 43
SP - 180
EP - 192
JO - Evaluation and the Health Professions
JF - Evaluation and the Health Professions
IS - 3
ER -