The use of medical records in research: What do patients want?

Nancy E. Kass; Marvin R. Natowicz; Sara Chandros Hull; Ruth R. Faden; Laura Plantinga; Lawrence O. Gostin; Julia Slutsman

doi:10.1111/j.1748-720X.2003.tb00105.x

The use of medical records in research: What do patients want?

Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin, Julia Slutsman

Academic Centers

Research output: Contribution to journal › Article › peer-review

54 Scopus citations

Abstract

Despite growing policy interest in medical privacy, few empirical data reveal patients' views concerning use of medical records for research. Based on the authors' data and those of others, this article suggests guidelines regarding obtaining consent for the use of medical records in research that attempt to respect patient autonomy and promote scientific and medical uses of this information for the public good.

Original language	English (US)
Pages (from-to)	429-433
Number of pages	5
Journal	Journal of Law, Medicine and Ethics
Volume	31
Issue number	3
DOIs	https://doi.org/10.1111/j.1748-720X.2003.tb00105.x
State	Published - 2003

ASJC Scopus subject areas

Issues, ethics and legal aspects
Health Policy

Access to Document

10.1111/j.1748-720X.2003.tb00105.x

Cite this

@article{78459cb3f8e048d4a64637cc51c2e28b,

title = "The use of medical records in research: What do patients want?",

abstract = "Despite growing policy interest in medical privacy, few empirical data reveal patients' views concerning use of medical records for research. Based on the authors' data and those of others, this article suggests guidelines regarding obtaining consent for the use of medical records in research that attempt to respect patient autonomy and promote scientific and medical uses of this information for the public good.",

author = "Kass, {Nancy E.} and Natowicz, {Marvin R.} and Hull, {Sara Chandros} and Faden, {Ruth R.} and Laura Plantinga and Gostin, {Lawrence O.} and Julia Slutsman",

year = "2003",

doi = "10.1111/j.1748-720X.2003.tb00105.x",

language = "English (US)",

volume = "31",

pages = "429--433",

journal = "Journal of Law, Medicine and Ethics",

issn = "1073-1105",

number = "3",

}

TY - JOUR

T1 - The use of medical records in research

T2 - What do patients want?

AU - Kass, Nancy E.

AU - Natowicz, Marvin R.

AU - Hull, Sara Chandros

AU - Faden, Ruth R.

AU - Plantinga, Laura

AU - Gostin, Lawrence O.

AU - Slutsman, Julia

PY - 2003

Y1 - 2003

N2 - Despite growing policy interest in medical privacy, few empirical data reveal patients' views concerning use of medical records for research. Based on the authors' data and those of others, this article suggests guidelines regarding obtaining consent for the use of medical records in research that attempt to respect patient autonomy and promote scientific and medical uses of this information for the public good.

AB - Despite growing policy interest in medical privacy, few empirical data reveal patients' views concerning use of medical records for research. Based on the authors' data and those of others, this article suggests guidelines regarding obtaining consent for the use of medical records in research that attempt to respect patient autonomy and promote scientific and medical uses of this information for the public good.

UR - http://www.scopus.com/inward/record.url?scp=0642307855&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0642307855&partnerID=8YFLogxK

U2 - 10.1111/j.1748-720X.2003.tb00105.x

DO - 10.1111/j.1748-720X.2003.tb00105.x

M3 - Article

C2 - 14626550

AN - SCOPUS:0642307855

SN - 1073-1105

VL - 31

SP - 429

EP - 433

JO - Journal of Law, Medicine and Ethics

JF - Journal of Law, Medicine and Ethics

IS - 3

ER -

The use of medical records in research: What do patients want?

Abstract

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this