The National Spina Bifida Program Transition Initiative: The People, the Plan, and the Process

Judy K. Thibadeau; Ann I. Alriksson-Schmidt; T. Andrew Zabel

doi:10.1016/j.pcl.2010.07.010

The National Spina Bifida Program Transition Initiative: The People, the Plan, and the Process

Judy K. Thibadeau, Ann I. Alriksson-Schmidt, T. Andrew Zabel

Kennedy Krieger Institute

Research output: Contribution to journal › Review article › peer-review

12 Scopus citations

Abstract

This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.

Original language	English (US)
Pages (from-to)	903-910
Number of pages	8
Journal	Pediatric clinics of North America
Volume	57
Issue number	4
DOIs	https://doi.org/10.1016/j.pcl.2010.07.010
State	Published - Aug 2010

Keywords

Employment
Health care
Social relationships
Spina bifida
Transition

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health

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10.1016/j.pcl.2010.07.010

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title = "The National Spina Bifida Program Transition Initiative: The People, the Plan, and the Process",

abstract = "This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.",

keywords = "Employment, Health care, Social relationships, Spina bifida, Transition",

author = "Thibadeau, {Judy K.} and Alriksson-Schmidt, {Ann I.} and Zabel, {T. Andrew}",

note = "Funding Information: This work was supported by the National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia. ",

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AU - Thibadeau, Judy K.

AU - Alriksson-Schmidt, Ann I.

AU - Zabel, T. Andrew

N1 - Funding Information: This work was supported by the National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia.

PY - 2010/8

Y1 - 2010/8

N2 - This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.

AB - This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course for persons growing up with spina bifida. Their challenges include achieving independent living, vocational independence, community mobility, and participation in social activities, and health management. The creation, the underlying concepts, and the dissemination of the Life Course Model are described.

KW - Employment

KW - Health care

KW - Social relationships

KW - Spina bifida

KW - Transition

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The National Spina Bifida Program Transition Initiative: The People, the Plan, and the Process

Abstract

Keywords

ASJC Scopus subject areas

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