The Feasibility of Personalized Endpoints in Assessing Treatment Outcomes for Rare Diseases: A Pilot Study of Goal Attainment Scaling in SCN2A-Associated Developmental Epileptic Encephalopathy

Gunes Sevinc, Kari Knox, Michelle George, Lindsey Evans, Ariela Kaiser, Katherine Charlotte Paltell, Leah Schust Myers, Natasha N. Ludwig, Mary Wojnaroski, Gabrielle Conecker, Jay Etta Hecker, Jenny Downs, Chere A.T. Chapman, Anne T. Berg

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Nursing and Health Professions

Medicine and Dentistry

Psychology