TY - JOUR
T1 - Strategies for Increasing Knowledge, Communication, and Access to Living Donor Transplantation
T2 - an Evidence Review to Inform Patient Education
AU - Hunt, Heather F.
AU - Rodrigue, James R.
AU - Dew, Mary Amanda
AU - Schaffer, Randolph L.
AU - Henderson, Macey L.
AU - Bloom, Randee
AU - Kacani, Patrick
AU - Shim, Pono
AU - Bolton, Lee
AU - Sanchez, William
AU - Lentine, Krista L.
N1 - Funding Information:
Preparation of this manuscript was supported by Awards from the National Institute of Diabetes and Digestive and Kidney Diseases No. R01DK098727 to James R. Rodrigue, No. U01 DK085587 to Mary Amanda Dew and No. K01DK114388 to Macey Henderson. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institute of Diabetes and Digestive and Kidney Diseases or the National Institutes of Health.
Publisher Copyright:
© 2018, Springer International Publishing AG, part of Springer Nature.
PY - 2018/3/1
Y1 - 2018/3/1
N2 - Purpose of Review: Inadequate knowledge of the benefits, risks, and opportunities for living donation is an important, potentially modifiable barrier to living donor transplantation. We assessed the current state of the evidence regarding strategies to increase knowledge, communication, and access to living donor transplantation, as reported in peer-reviewed medical literature. Recent Findings: Nineteen studies were reviewed, categorized as programs evaluated in randomized controlled trials (8 studies) and programs supported by observational (non-randomized) studies (11 studies). Content extraction demonstrated that comprehensive education about living donation and living donor transplantation involves multiple learners—the transplant candidate, potential living donors, and social support networks—and requires communicating complex information about the risks and benefits of donation, transplantation, and alternative therapies to these different audiences. Transplant centers can help patients learn about living donor transplantation through a variety of formats and modalities, including center-based, home-based, and remote technology-based education, outreach to dialysis centers, and social media. Evaluation of these strategies and program themes informed a new Organ Procurement and Transplantation Network (OPTN)/United Network for Organ Sharing (UNOS) public education brochure. Summary: Increasing transplant candidate knowledge and comfort in talking about living donation and transplantation can reduce educational barriers to pursuit of living donor transplants. Ongoing efforts are needed to develop, refine, and disseminate educational programs to help improve transplant access for more patients in need of organ donors.
AB - Purpose of Review: Inadequate knowledge of the benefits, risks, and opportunities for living donation is an important, potentially modifiable barrier to living donor transplantation. We assessed the current state of the evidence regarding strategies to increase knowledge, communication, and access to living donor transplantation, as reported in peer-reviewed medical literature. Recent Findings: Nineteen studies were reviewed, categorized as programs evaluated in randomized controlled trials (8 studies) and programs supported by observational (non-randomized) studies (11 studies). Content extraction demonstrated that comprehensive education about living donation and living donor transplantation involves multiple learners—the transplant candidate, potential living donors, and social support networks—and requires communicating complex information about the risks and benefits of donation, transplantation, and alternative therapies to these different audiences. Transplant centers can help patients learn about living donor transplantation through a variety of formats and modalities, including center-based, home-based, and remote technology-based education, outreach to dialysis centers, and social media. Evaluation of these strategies and program themes informed a new Organ Procurement and Transplantation Network (OPTN)/United Network for Organ Sharing (UNOS) public education brochure. Summary: Increasing transplant candidate knowledge and comfort in talking about living donation and transplantation can reduce educational barriers to pursuit of living donor transplants. Ongoing efforts are needed to develop, refine, and disseminate educational programs to help improve transplant access for more patients in need of organ donors.
KW - Decision-making
KW - Health education
KW - Living donor transplantation
KW - Living organ donation
KW - Patient education
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U2 - 10.1007/s40472-018-0181-1
DO - 10.1007/s40472-018-0181-1
M3 - Review article
AN - SCOPUS:85060955024
SN - 2196-3029
VL - 5
SP - 27
EP - 44
JO - Current Transplantation Reports
JF - Current Transplantation Reports
IS - 1
ER -