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Skull Base Registries: A Roadmap

  • Kara P. Parikh
  • , Mustafa Motiwala
  • , Furlan A. Beer
  • , L. Madison Michael
  • , Sanjeet V. Rangarajan
  • , Garret W. Choby
  • , Varun R. Kshettry
  • , Sara Saleh
  • , Debraj Mukherjee
  • , Claudia Kirsch
  • , Erin McKean
  • , Jeffrey M. Sorenson

Research output: Contribution to journalReview articlepeer-review

Abstract

Hospitals, payors, and patients increasingly expect us to report our outcomes in more detail and to justify our treatment decisions and costs. Although there are many stakeholders in surgical outcomes, physicians must take the lead role in defining how outcomes are assessed. Skull base lesions interact with surrounding anatomy to produce a complex spectrum of presentations and surgical challenges, requiring a wide variety of surgical approaches. Moreover, many skull base lesions are relatively rare. These factors and others often preclude the use of prospective randomized clinical trials, thus necessitating alternate methods of scientific inquiry. In this paper, we propose a roadmap for implementing a skull base registry, along with expected benefits and challenges.

Original languageEnglish (US)
Pages (from-to)561-578
Number of pages18
JournalJournal of Neurological Surgery, Part B: Skull Base
Volume83
Issue number6
DOIs
StatePublished - Dec 2022

Keywords

  • database
  • multicenter study
  • patient reported outcomes
  • quality of life
  • registry
  • skull base

ASJC Scopus subject areas

  • Clinical Neurology

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