TY - JOUR
T1 - Satisfaction and effectiveness of opioid pain management among adults with cystic fibrosis
T2 - A mixed methods study
AU - Allgood, Sarah
AU - Zemlak, Jessica L.
AU - Dellon, Elisabeth
AU - Kapnadak, Siddhartha G.
AU - Goggin, Jessica
AU - Lechtzin, Noah
N1 - Funding Information:
The authors would like to thank the Cystic Fibrosis Foundation for facilitating research through Community Voice to support this work. Additionally, we would like to thank the adults with cystic fibrosis and family members across the United States for sharing their insights.
Publisher Copyright:
© 2021
PY - 2022/1
Y1 - 2022/1
N2 - Background: Chronic pain is common among people living with cystic fibrosis (CF) and associated with worse clinical outcomes. Despite this, little is known about how pain is managed and how opioids are used to treat pain. The purpose of this convergent mixed methods study was to examine self-reported satisfaction and effectiveness of pain management strategies among a sample of adults with CF who are prescribed opioids. Methods: We developed an online survey querying 4 domains - demographics, pain characteristics, pain communication, and management strategies. This was distributed nationally to adults with CF (n=48) via various online platforms. We obtained quantitative and qualitative responses regarding satisfaction and effectiveness of pain management. Emerged themes from qualitative data were compared with responses from quantitative survey domains. Results: Participants reported high levels of satisfaction and effectiveness with their opioid pain management plans. However, qualitative themes emerged regarding fears of addiction, experiences of feeling stigmatized by the healthcare system and ineffectiveness and inefficiency of alternative therapies for adequate pain relief. Conclusions: Adults with CF reported opioids as an important component of their current pain management plans despite risks associated with opioid use. CF-specific pain management guideline development is warranted as is further research exploring pain development.
AB - Background: Chronic pain is common among people living with cystic fibrosis (CF) and associated with worse clinical outcomes. Despite this, little is known about how pain is managed and how opioids are used to treat pain. The purpose of this convergent mixed methods study was to examine self-reported satisfaction and effectiveness of pain management strategies among a sample of adults with CF who are prescribed opioids. Methods: We developed an online survey querying 4 domains - demographics, pain characteristics, pain communication, and management strategies. This was distributed nationally to adults with CF (n=48) via various online platforms. We obtained quantitative and qualitative responses regarding satisfaction and effectiveness of pain management. Emerged themes from qualitative data were compared with responses from quantitative survey domains. Results: Participants reported high levels of satisfaction and effectiveness with their opioid pain management plans. However, qualitative themes emerged regarding fears of addiction, experiences of feeling stigmatized by the healthcare system and ineffectiveness and inefficiency of alternative therapies for adequate pain relief. Conclusions: Adults with CF reported opioids as an important component of their current pain management plans despite risks associated with opioid use. CF-specific pain management guideline development is warranted as is further research exploring pain development.
KW - Adults
KW - Opioids
KW - Pain
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U2 - 10.1016/j.jcf.2021.06.007
DO - 10.1016/j.jcf.2021.06.007
M3 - Article
C2 - 34257058
AN - SCOPUS:85110466993
SN - 1569-1993
VL - 21
SP - e15-e22
JO - Journal of Cystic Fibrosis
JF - Journal of Cystic Fibrosis
IS - 1
ER -