TY - JOUR
T1 - Providing monetary and non-monetary goods to research participants
T2 - perspectives and practices of researchers and Research Ethics Committees in Zambia
AU - Mweemba, Chris
AU - Ali, Joseph
AU - Hyder, Adnan Ali
N1 - Funding Information:
This work was supported by the Fogarty International Center and National Institute of Allergy and Infectious Diseases of the National Institutes of Health [Award Number R25 TW 001604]. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. We would also like to sincerely thank Julia Slisz for taking time to review the manuscript and getting it ready for peer review.
Publisher Copyright:
© 2018 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2020
Y1 - 2020
N2 - There are disagreements among ethicists on what comprises an “appropriate” good to offer research participants. Debates often focus on the type, quantity, timing, and ethical appropriateness of such offers, particularly in settings where participants may be socio-economically vulnerable, such as in parts of Zambia. This was a Cross-sectional online survey of researchers and Research Ethics Committees (RECs) designed to understand practices, attitudes and policies associated with provision of goods to research participants. Of 122 responding researchers, 69 met eligibility criteria. Responses were also received from five of the six Zambian RECs involved in reviewing research proposals. Forty-nine researchers (71.0%) confirmed previous experience offering goods to participants. Of these, 21 (42.9%) offered participants money only, 18 (36.7%) offered non-monetary goods, while the rest offered both monetary and non-monetary goods. Generally, goods were offered and approved by RECs to compensate for time, lost wages and transportation. One REC and 34.8% of researchers reported being subject to an institutional policy on offering goods to participants. While reimbursement is the main reason for offering goods to participants in Zambia, caution is required when deciding on the type and quantity of goods to offer given the potential for community mistrust and manipulation.
AB - There are disagreements among ethicists on what comprises an “appropriate” good to offer research participants. Debates often focus on the type, quantity, timing, and ethical appropriateness of such offers, particularly in settings where participants may be socio-economically vulnerable, such as in parts of Zambia. This was a Cross-sectional online survey of researchers and Research Ethics Committees (RECs) designed to understand practices, attitudes and policies associated with provision of goods to research participants. Of 122 responding researchers, 69 met eligibility criteria. Responses were also received from five of the six Zambian RECs involved in reviewing research proposals. Forty-nine researchers (71.0%) confirmed previous experience offering goods to participants. Of these, 21 (42.9%) offered participants money only, 18 (36.7%) offered non-monetary goods, while the rest offered both monetary and non-monetary goods. Generally, goods were offered and approved by RECs to compensate for time, lost wages and transportation. One REC and 34.8% of researchers reported being subject to an institutional policy on offering goods to participants. While reimbursement is the main reason for offering goods to participants in Zambia, caution is required when deciding on the type and quantity of goods to offer given the potential for community mistrust and manipulation.
KW - Research Ethics Committees
KW - Research ethics
KW - Zambia
KW - compensation
KW - inducements
KW - institutional review boards
KW - monetary and non-monetary goods
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U2 - 10.1080/11287462.2018.1527672
DO - 10.1080/11287462.2018.1527672
M3 - Article
C2 - 33343185
AN - SCOPUS:85070490159
SN - 1128-7462
VL - 31
SP - 90
EP - 103
JO - Global Bioethics
JF - Global Bioethics
IS - 1
ER -