Providing a primary care medical home for children and youth with spina bifida

Robert Burke; Gregory S. Liptak; Nancy A. Murphy; Richard C. Adams; Sandra L. Friedman; Miriam Kalichman; Susan E. Levy; Douglas McNeal; Kenneth W. Norwood; Renee M. Turchi; Susan E. Wiley; Paul H. Lipkin; Carolyn Bridgemohan; Nora Wells; Bonnie Strickland; Georgina Peacock; Max Wiznitzer

doi:10.1542/peds.2011-2219

Providing a primary care medical home for children and youth with spina bifida

Robert Burke, Gregory S. Liptak, Nancy A. Murphy, Richard C. Adams, Sandra L. Friedman, Miriam Kalichman, Susan E. Levy, Douglas McNeal, Kenneth W. Norwood, Renee M. Turchi, Susan E. Wiley, Paul H. Lipkin, Carolyn Bridgemohan, Nora Wells, Bonnie Strickland, Georgina Peacock, Max Wiznitzer

Kennedy Krieger Institute

Research output: Contribution to journal › Article › peer-review

28 Scopus citations

Abstract

The pediatric primary care provider in the medical home has a central and unique role in the care of children with spina bifida. The primary care provider addresses not only the typical issues of preventive and acute health care but also the needs specific to these children. Optimal care requires communication and comanagement with pediatric medical and developmental subspecialists, surgical specialists, therapists, and community providers. The medical home provider is essential in supporting the family and advocating for the child from the time of entry into the practice through adolescence, which includes transition and transfer to adult health care. This report reviews aspects of care specific to the infant with spina bifida (particularly myelomeningocele) that will facilitate optimal medical, functional, and developmental outcomes.

Original language	English (US)
Pages (from-to)	e1645-e1657
Journal	Pediatrics
Volume	128
Issue number	6
DOIs	https://doi.org/10.1542/peds.2011-2219
State	Published - Dec 2011

Keywords

Chronic condition
Developmental disability
Hydrocephalus
Medical home
Meningomyelocele
Myelomeningocele
Spina bifida

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health

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10.1542/peds.2011-2219

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Burke, R., Liptak, G. S., Murphy, N. A., Adams, R. C., Friedman, S. L., Kalichman, M., Levy, S. E., McNeal, D., Norwood, K. W., Turchi, R. M., Wiley, S. E., Lipkin, P. H., Bridgemohan, C., Wells, N., Strickland, B., Peacock, G., & Wiznitzer, M. (2011). Providing a primary care medical home for children and youth with spina bifida. Pediatrics, 128(6), e1645-e1657. https://doi.org/10.1542/peds.2011-2219

Burke, R, Liptak, GS, Murphy, NA, Adams, RC, Friedman, SL, Kalichman, M, Levy, SE, McNeal, D, Norwood, KW, Turchi, RM, Wiley, SE, Lipkin, PH, Bridgemohan, C, Wells, N, Strickland, B, Peacock, G & Wiznitzer, M 2011, 'Providing a primary care medical home for children and youth with spina bifida', Pediatrics, vol. 128, no. 6, pp. e1645-e1657. https://doi.org/10.1542/peds.2011-2219

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abstract = "The pediatric primary care provider in the medical home has a central and unique role in the care of children with spina bifida. The primary care provider addresses not only the typical issues of preventive and acute health care but also the needs specific to these children. Optimal care requires communication and comanagement with pediatric medical and developmental subspecialists, surgical specialists, therapists, and community providers. The medical home provider is essential in supporting the family and advocating for the child from the time of entry into the practice through adolescence, which includes transition and transfer to adult health care. This report reviews aspects of care specific to the infant with spina bifida (particularly myelomeningocele) that will facilitate optimal medical, functional, and developmental outcomes.",

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Providing a primary care medical home for children and youth with spina bifida

Abstract

Keywords

ASJC Scopus subject areas

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