TY - JOUR
T1 - Perspectives on illness-related stigma and electronically sharing psychiatric health information by people with multiple sclerosis
AU - Yu, Eileen
AU - Adams-Clark, Alexis
AU - Riehm, Alison
AU - Franke, Caroline
AU - Susukida, Ryoko
AU - Pinto, Melissa
AU - Arenberg, Steven
AU - Tosi, Dominique
AU - Hughes, Abbey
AU - Montague, Amanda
AU - Kumar, Anupama
AU - Jamison, Kay
AU - Kaplin, Adam I
N1 - Publisher Copyright:
© 2020
PY - 2021/3/1
Y1 - 2021/3/1
N2 - Background: Electronic medical records (EMRs) facilitate more integrated and comprehensive care. Despite this, EMRs are used less frequently in psychiatry compared to other medical disciplines, in part due to concerns regarding stigma surrounding mental health. This paper explores the willingness to share medical information among patients with multiple sclerosis (MS), who experience higher rates of psychiatric comorbidities compared to the general population, and the role that stigma plays in patient preferences. Methods: MS patients were surveyed about their co-occurring psychiatric and non-psychiatric diagnoses, willingness to share their health information electronically among their treating doctors, and levels of self and societal stigma associated with their diagnoses. Results: Participants were slightly more willing to share their non-psychiatric medical information vs. psychiatric information. Despite the presence of stigma decreasing patient willingness to share medical records, those with psychiatric co-occurring disorders, compared to those without, endorsed significantly greater willingness to electronically share their health records. The majority of diagnoses for which participants experienced the greatest difference in self vs. societal stigmas were psychiatric ones, including substance use, eating and mood disorders. Societal stigma strongly correlated with decreased non-psychiatric medication sharing, while self stigma was strongly correlated with decreased psychiatric medications sharing. Limitations: Standardized scales were not used to assess patient stigma and there is a potential lack of generalizability of results beyond patients with MS. Conclusions: These insights into patient preferences toward sharing their medical information should inform decisions to implement EMRs, particularly for patient populations experiencing higher than average levels of psychiatric comorbidities.
AB - Background: Electronic medical records (EMRs) facilitate more integrated and comprehensive care. Despite this, EMRs are used less frequently in psychiatry compared to other medical disciplines, in part due to concerns regarding stigma surrounding mental health. This paper explores the willingness to share medical information among patients with multiple sclerosis (MS), who experience higher rates of psychiatric comorbidities compared to the general population, and the role that stigma plays in patient preferences. Methods: MS patients were surveyed about their co-occurring psychiatric and non-psychiatric diagnoses, willingness to share their health information electronically among their treating doctors, and levels of self and societal stigma associated with their diagnoses. Results: Participants were slightly more willing to share their non-psychiatric medical information vs. psychiatric information. Despite the presence of stigma decreasing patient willingness to share medical records, those with psychiatric co-occurring disorders, compared to those without, endorsed significantly greater willingness to electronically share their health records. The majority of diagnoses for which participants experienced the greatest difference in self vs. societal stigmas were psychiatric ones, including substance use, eating and mood disorders. Societal stigma strongly correlated with decreased non-psychiatric medication sharing, while self stigma was strongly correlated with decreased psychiatric medications sharing. Limitations: Standardized scales were not used to assess patient stigma and there is a potential lack of generalizability of results beyond patients with MS. Conclusions: These insights into patient preferences toward sharing their medical information should inform decisions to implement EMRs, particularly for patient populations experiencing higher than average levels of psychiatric comorbidities.
KW - Electronic medical records
KW - Multiple sclerosis
KW - Stigma
UR - http://www.scopus.com/inward/record.url?scp=85099391023&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85099391023&partnerID=8YFLogxK
U2 - 10.1016/j.jad.2020.12.167
DO - 10.1016/j.jad.2020.12.167
M3 - Article
C2 - 33601726
AN - SCOPUS:85099391023
SN - 0165-0327
VL - 282
SP - 840
EP - 845
JO - Journal of Affective Disorders
JF - Journal of Affective Disorders
ER -