Opportunities for enhanced strategic use of surveys, medical records, and program data for HIV surveillance of key populations: Scoping review

Sharon Stucker Weir, Stefan D. Baral, Jessie K. Edwards, Sabrina Zadrozny, James Hargreaves, Jinkou Zhao, Keith Sabin

Research output: Contribution to journalReview articlepeer-review

8 Scopus citations


Background: Normative guidelines from the World Health Organization recommend tracking strategic information indicators among key populations. Monitoring progress in the global response to the HIV epidemic uses indicators put forward by the Joint United Nations Programme on HIV/AIDS. These include the 90-90-90 targets that require a realignment of surveillance data, routinely collected program data, and medical record data, which historically have developed separately. Objective: The aim of this study was to describe current challenges for monitoring HIV-related strategic information indicators among key populations ((men who have sex with men [MSM], people in prisons and other closed settings, people who inject drugs, sex workers, and transgender people) and identify future opportunities to enhance the use of surveillance data, programmatic data, and medical record data to describe the HIV epidemic among key populations and measure the coverage of HIV prevention, care, and treatment programs. Methods: To provide a historical perspective, we completed a scoping review of the expansion of HIV surveillance among key populations over the past three decades. To describe current efforts, we conducted a review of the literature to identify published examples of SI indicator estimates among key populations. To describe anticipated challenges and future opportunities to improve measurement of strategic information indicators, particularly from routine program and health data, we consulted participants of the Third Global HIV Surveillance Meeting in Bangkok, where the 2015 World Health Organization strategic information guidelines were launched. Results: There remains suboptimal alignment of surveillance and programmatic data, as well as routinely collected medical records to facilitate the reporting of the 90-90-90 indicators for HIV among key populations. Studies (n=3) with estimates of all three 90-90-90 indicators rely on cross-sectional survey data. Programmatic data and medical record data continue to be insufficiently robust to provide estimates of the 90-90-90 targets for key populations. Conclusions: Current reliance on more active data collection processes, including key population-specific surveys, remains warranted until the quality and validity of passively collected routine program and medical record data for key populations is optimized.

Original languageEnglish (US)
Article numbere28
JournalJMIR Public Health and Surveillance
Issue number5
StatePublished - May 2018


  • Epidemiology
  • HIV
  • Sex workers

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Health Informatics


Dive into the research topics of 'Opportunities for enhanced strategic use of surveys, medical records, and program data for HIV surveillance of key populations: Scoping review'. Together they form a unique fingerprint.

Cite this