TY - JOUR
T1 - National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System
T2 - Review of Program and Database
AU - Amtmann, Dagmar
AU - McMullen, Kara
AU - Bamer, Alyssa
AU - Fauerbach, James A.
AU - Gibran, Nicole S.
AU - Herndon, David
AU - Schneider, Jeffrey C.
AU - Kowalske, Karen
AU - Holavanahalli, Radha
AU - Miller, A. Cate
N1 - Funding Information:
The BMS centers program has been funded in consecutive cycles of 5 years each, beginning in 1994: 1994 to 1997, 1997 to 2002, 2002 to 2007, 2007 to 2012, and 2012 to 2017. At the time of the writing of this article, the burn community is anticipating the release of the grant funding opportunity announcement for the 2017 to 2022 funding cycle. To be eligible for BMS funding, applicants must provide comprehensive care to individuals with burn injuries, including acute injury treatment and rehabilitation after hospital discharge, if indicated. The 4 BMS centers for the 2012 to 2017 funding cycle include the Boston-Harvard Burn Injury Model System, the North Texas Burn Rehabilitation Model System, the Northwest Regional Burn Model System, and the University of Texas Medical Branch/Shriner's Hospitals for Children-Galveston Burn Model System. Previously funded centers included the University of Colorado Denver Burn Model System (1994–1997) and the Johns Hopkins Burn Model System (1997–2012). The funding from NIDILRR is awarded on the basis of competitive renewals and peer reviews of all grant proposals submitted. NIDILRR publishes all request for proposals and abstracts for projects on its website ( https://www.acl.gov/about-acl/about-national-institute-disability-independent-living-and-rehabilitation-research ). In the recent 5-year funding cycle, BMS centers received an average of $375,000 (including indirect costs) per center per year. The BMS NDSC received $350,000 (including indirect costs) annually for 5 years.
Funding Information:
Supported in part by the Administration for Community Living, U.S. Department of Health and Human Services, Washington, DC (grant no. 90DP0053). Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.
Funding Information:
The National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) funds 3 traumatic injury model system centers programs: the Spinal Cord Injury Model System, the Traumatic Brain Injury Model System, and the Burn Model System (BMS). The programs share a common goal of improving long-term health and function, community living and participation, and employment outcomes of individuals with these injuries. Since its inception in 1994, the aim of the BMS centers program has been to “provide leadership in rehabilitation as a key component of exemplary burn care and to advance the research base on effective rehabilitation services for burn survivors.” 1 (p. 13,583) The BMS centers program was originally funded by the National Institute on Disability and Rehabilitation Research of the U.S. Department of Education. In 2014, the National Institute on Disability and Rehabilitation Research was moved from the U.S. Department of Education to the Administration for Community Living of the U.S. Department of Health and Human Services and was renamed the National Institute on Disability, Independent Living, and Rehabilitation Research. The BMS consists of 4 burn centers, a National Data and Statistical Center (NDSC), and a Model Systems Knowledge Translation Center (MSKTC). The BMS centers, located across the nation, provide comprehensive, multidisciplinary services and conduct research that contributes to the development of evidence-based burn injury rehabilitation. 1 This goal is accomplished through at least 3 funded research activities. First, BMS centers participate in the longitudinal BMS National Database (NDB) by collecting and contributing information on common data elements for a centralized BMS database. Data collected include preinjury history, demographic characteristics, burn characteristics, and treatment information as well as rehabilitation services and long-term outcomes such as depression, posttraumatic stress disorder, return to work, and community reintegration. Second, each BMS center conducts site-specific research, including the evaluation of interventions for pain and itch, the effects of propranolol on pediatric burn outcomes, and the effectiveness of return to work programs. Third, BMS centers collaborate with the MSKTC to provide research-based information to multiple stakeholder groups such as burn survivors and their families, clinicians, policymakers, and the general public. The products of these knowledge translation efforts include plain language translations of BMS journal articles, systematic reviews of burn literature, and fact sheets containing information on a range of topics relevant to survivors and their families, such as wound care, exercise, and return to work and school. In addition, consumer involvement in BMS activities is a hallmark of the program. Each grantee is required to ensure that the input of individuals with burn injury is used to shape BMS research and its knowledge translation products.
Publisher Copyright:
© 2017 American Congress of Rehabilitation Medicine
PY - 2020/1
Y1 - 2020/1
N2 - The Burn Model System (BMS) centers program was created in 1994 to evaluate the long-term outcomes of burn injuries. As part of this multicenter program, a comprehensive longitudinal database was developed to facilitate the study of a number of functional and psychosocial outcomes after burn injury. In this article, we provide an overview of the data collection procedures, measures selection process, and an overview of the participant data collected between 1994 and 2016. Surveys were administered during hospitalization and at 6, 12, and 24 months after discharge, and in the most recent funding cycle, data collection at every 5 years postinjury was added. More than 7200 people with burn injury were eligible to participate in the BMS National Longitudinal Database. Of these, >5900 (82%) were alive at discharge and consented to follow-up data collection. The BMS National Longitudinal Database represents a large sample of people with burn injury, including information on demographic characteristics, injury characteristics, and health outcomes. The database is publicly available and can be used to examine the effect of burn injury on long-term outcomes.
AB - The Burn Model System (BMS) centers program was created in 1994 to evaluate the long-term outcomes of burn injuries. As part of this multicenter program, a comprehensive longitudinal database was developed to facilitate the study of a number of functional and psychosocial outcomes after burn injury. In this article, we provide an overview of the data collection procedures, measures selection process, and an overview of the participant data collected between 1994 and 2016. Surveys were administered during hospitalization and at 6, 12, and 24 months after discharge, and in the most recent funding cycle, data collection at every 5 years postinjury was added. More than 7200 people with burn injury were eligible to participate in the BMS National Longitudinal Database. Of these, >5900 (82%) were alive at discharge and consented to follow-up data collection. The BMS National Longitudinal Database represents a large sample of people with burn injury, including information on demographic characteristics, injury characteristics, and health outcomes. The database is publicly available and can be used to examine the effect of burn injury on long-term outcomes.
KW - Burn
KW - Injury
KW - Rehabilitation
UR - http://www.scopus.com/inward/record.url?scp=85039068928&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85039068928&partnerID=8YFLogxK
U2 - 10.1016/j.apmr.2017.09.109
DO - 10.1016/j.apmr.2017.09.109
M3 - Article
C2 - 28989076
AN - SCOPUS:85039068928
SN - 0003-9993
VL - 101
SP - S5-S15
JO - Archives of physical medicine and rehabilitation
JF - Archives of physical medicine and rehabilitation
IS - 1
ER -