Measuring Transition Readiness: A Correlational Study of Perceptions of Parent and Adolescents and Young Adults with Sickle Cell Disease

Barbara Speller-Brown; Katherine Patterson Kelly; Brigit VanGraafeiland; Suzanne Feetham; Anne Sill; Deepika Darbari; Emily R. Meier

doi:10.1016/j.pedn.2015.06.008

Measuring Transition Readiness: A Correlational Study of Perceptions of Parent and Adolescents and Young Adults with Sickle Cell Disease

Barbara Speller-Brown, Katherine Patterson Kelly, Brigit VanGraafeiland, Suzanne Feetham, Anne Sill, Deepika Darbari, Emily R. Meier

School of Nursing

Research output: Contribution to journal › Article › peer-review

15 Scopus citations

Abstract

Adolescents and young adults (AYAs) often transfer from pediatric to adult care without adequate preparation, resulting in increased morbidity and mortality. The purpose of this descriptive research study of parent/AYA dyads was to measure perceptions of transition readiness. Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement. More attention should be focused on these aspects of care to improve transition from pediatric to adult care for AYAs with sickle cell disease.

Original language	English (US)
Article number	1320
Pages (from-to)	788-796
Number of pages	9
Journal	Journal of pediatric nursing
Volume	30
Issue number	5
DOIs	https://doi.org/10.1016/j.pedn.2015.06.008
State	Published - Sep 1 2015

Keywords

Adolescents
Health care responsibility
Parent involvement
Sickle cell disease
Transition readiness
Young adults

ASJC Scopus subject areas

Pediatrics

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10.1016/j.pedn.2015.06.008

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abstract = "Adolescents and young adults (AYAs) often transfer from pediatric to adult care without adequate preparation, resulting in increased morbidity and mortality. The purpose of this descriptive research study of parent/AYA dyads was to measure perceptions of transition readiness. Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement. More attention should be focused on these aspects of care to improve transition from pediatric to adult care for AYAs with sickle cell disease.",

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AU - VanGraafeiland, Brigit

AU - Feetham, Suzanne

AU - Sill, Anne

AU - Darbari, Deepika

AU - Meier, Emily R.

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AB - Adolescents and young adults (AYAs) often transfer from pediatric to adult care without adequate preparation, resulting in increased morbidity and mortality. The purpose of this descriptive research study of parent/AYA dyads was to measure perceptions of transition readiness. Factors that were found to be associated with perceptions of increased readiness to transition included AYA age, the amount of responsibility AYAs assume for their healthcare and the degree of parent involvement. More attention should be focused on these aspects of care to improve transition from pediatric to adult care for AYAs with sickle cell disease.

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Measuring Transition Readiness: A Correlational Study of Perceptions of Parent and Adolescents and Young Adults with Sickle Cell Disease

Abstract

Keywords

ASJC Scopus subject areas

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