TY - JOUR
T1 - Long-Term Patient-Reported Outcomes after Surgery for Superior Canal Dehiscence Syndrome
AU - Alkhafaji, Mohammed S.
AU - Varma, Sanskriti
AU - Pross, Seth E.
AU - Sharon, Jeffrey D.
AU - Nellis, Jason C.
AU - Della Santina, Charles C.
AU - Minor, Lloyd B
AU - Carey, John P.
N1 - Funding Information:
Address correspondence and reprint requests to John P. Carey, M.D., 601 N. Caroline St, JHOC 6161a, Baltimore, MD 21287; E-mail: jcarey@jhmi.edu Shared First Authorship: M.S.A. and S.V. have contributed equally to this work and should thus share first authorship. Sources of Support: Departmental Funds. Funding from NIH, Wellcome Trust, Howard Hughes Medical Institute? None. Financial Disclosure Information: No financial disclosures. Institutional Review Board: IRB00128997. The authors disclose no conflicts of interest. Supplemental digital content is available in the text.
Publisher Copyright:
Copyright © 2017 Otology & Neurotology, Inc.
PY - 2017/10/1
Y1 - 2017/10/1
N2 - Objective: Evaluate the long-term patient-reported outcomes of surgery for superior canal dehiscence syndrome (SCDS). Study Design: Cross-sectional survey. Setting: Tertiary referral center. Patients: Adults who have undergone surgery for SCDS with at least 1 year since surgery. Main Outcome Measure(s): Primary outcome: change in symptoms that led to surgery. Secondary outcomes: change in 11 SCDS-associated symptoms, change in psychosocial metrics, and willingness to recommend surgery to friends with SCDS. Results: Ninety-three (43%) respondents completed the survey with mean (SD) time since surgery of 5.3 (3.6) years. Ninety-five percent of respondents reported the symptoms that led them to have surgery were "somewhat better," "much better," or "completely cured." Those with unilateral symptoms were more likely to report improvement than those with bilateral symptoms. There was no difference between those with short (1-5 yr) versus long (5-20 yr) follow-up. Each of the SCDS-associated symptoms showed significant improvement. The largest improvements were for autophony, pulsatile tinnitus, audible bodily sounds, and sensitivity to loud sound. Headaches, imbalance, dizziness, and brain fog showed the least improvements. Most patients reported improvements in quality of life, mood, and ability to function at work and socially. Ninety-five percent of patients would recommend SCDS surgery. Conclusions: Respondents demonstrated durable improvements in the symptoms that led them to have surgery. Auditory symptoms had the greatest improvements. Headaches, imbalance, dizziness, and brain fog showed the least improvements. Nearly, all patients would recommend SCDS surgery to others. These results can be used to counsel patients regarding the lasting benefits of surgery for SCDS.
AB - Objective: Evaluate the long-term patient-reported outcomes of surgery for superior canal dehiscence syndrome (SCDS). Study Design: Cross-sectional survey. Setting: Tertiary referral center. Patients: Adults who have undergone surgery for SCDS with at least 1 year since surgery. Main Outcome Measure(s): Primary outcome: change in symptoms that led to surgery. Secondary outcomes: change in 11 SCDS-associated symptoms, change in psychosocial metrics, and willingness to recommend surgery to friends with SCDS. Results: Ninety-three (43%) respondents completed the survey with mean (SD) time since surgery of 5.3 (3.6) years. Ninety-five percent of respondents reported the symptoms that led them to have surgery were "somewhat better," "much better," or "completely cured." Those with unilateral symptoms were more likely to report improvement than those with bilateral symptoms. There was no difference between those with short (1-5 yr) versus long (5-20 yr) follow-up. Each of the SCDS-associated symptoms showed significant improvement. The largest improvements were for autophony, pulsatile tinnitus, audible bodily sounds, and sensitivity to loud sound. Headaches, imbalance, dizziness, and brain fog showed the least improvements. Most patients reported improvements in quality of life, mood, and ability to function at work and socially. Ninety-five percent of patients would recommend SCDS surgery. Conclusions: Respondents demonstrated durable improvements in the symptoms that led them to have surgery. Auditory symptoms had the greatest improvements. Headaches, imbalance, dizziness, and brain fog showed the least improvements. Nearly, all patients would recommend SCDS surgery to others. These results can be used to counsel patients regarding the lasting benefits of surgery for SCDS.
KW - Patient-reported outcomes
KW - Superior semicircular canal dehiscence syndrome
KW - Surgical outcomes
KW - Survey
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U2 - 10.1097/MAO.0000000000001550
DO - 10.1097/MAO.0000000000001550
M3 - Article
C2 - 28902804
AN - SCOPUS:85029740219
SN - 1531-7129
VL - 38
SP - 1319
EP - 1326
JO - Otology and Neurotology
JF - Otology and Neurotology
IS - 9
ER -