Maladies neuromusculaires mettant en jeu le pronostic vital: Intérêt d'une démarche palliative pour les enfants et leurs familles

Cynda H. Rushton; Gail Geller

doi:10.1016/j.medpal.2010.03.008

Maladies neuromusculaires mettant en jeu le pronostic vital: Intérêt d'une démarche palliative pour les enfants et leurs familles

Translated title of the contribution: Life-threatening neuromuscular disorders: Interest in palliative care for children and their families

Cynda H. Rushton, Gail Geller

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Research output: Contribution to journal › Article › peer-review

Abstract

Traditionally palliative care has been associated with end-of-life care and abandonment of hope. Newer models of palliative care are now being integrated from the time of diagnosis for chronic, life-threatening conditions of childhood, creating a new vision of hope for the children and families affected by these disorders. In this paper we describe a broader conceptualization of pediatric palliative care and examine its applicability to two common life-threatening pediatric neuromuscular diseases.

Translated title of the contribution	Life-threatening neuromuscular disorders: Interest in palliative care for children and their families
Original language	French
Pages (from-to)	e1-e6
Journal	Medecine Palliative
Volume	9
Issue number	6
DOIs	https://doi.org/10.1016/j.medpal.2010.03.008
State	Published - Dec 2010

Keywords

Duchenne muscular dystrophy
Hope
Pediatric palliative care
Quality of care
Spinal muscular atrophy type I

ASJC Scopus subject areas

Oncology
Oncology(nursing)
Anesthesiology and Pain Medicine

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10.1016/j.medpal.2010.03.008

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abstract = "Traditionally palliative care has been associated with end-of-life care and abandonment of hope. Newer models of palliative care are now being integrated from the time of diagnosis for chronic, life-threatening conditions of childhood, creating a new vision of hope for the children and families affected by these disorders. In this paper we describe a broader conceptualization of pediatric palliative care and examine its applicability to two common life-threatening pediatric neuromuscular diseases.",

keywords = "Duchenne muscular dystrophy, Hope, Pediatric palliative care, Quality of care, Spinal muscular atrophy type I",

author = "Rushton, {Cynda H.} and Gail Geller",

note = "Funding Information: This study was supported by a grant from the Stavros Niarchos Foundation. ",

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KW - Quality of care

KW - Spinal muscular atrophy type I

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Maladies neuromusculaires mettant en jeu le pronostic vital: Intérêt d'une démarche palliative pour les enfants et leurs familles

Abstract

Keywords

ASJC Scopus subject areas

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