Integrating community voices in the research continuum: Perspectives on a consultation service

Crystal D. Evans, Joy P. Nanda, Pamela Ouyang, Lee Bone, Samuel Byiringiro, Cyd Lacanienta, Roger Clark, Christine Weston, Hae Ra Han, Mia Terkowitz, Barbara Bates-Hopkins, Panagis Galiatsatos, Ashley Jingzhi Xu, Sarah Stevens, Cheryl R. Himmelfarb

Research output: Contribution to journalArticlepeer-review

Abstract

The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.

Original languageEnglish (US)
Article numbere177
JournalJournal of Clinical and Translational Science
Volume7
Issue number1
DOIs
StatePublished - Jul 28 2023

Keywords

  • Translational research
  • community advisory board
  • community engagement
  • consultation service
  • research continuum

ASJC Scopus subject areas

  • General Medicine

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