TY - JOUR
T1 - Integrating community voices in the research continuum
T2 - Perspectives on a consultation service
AU - Evans, Crystal D.
AU - Nanda, Joy P.
AU - Ouyang, Pamela
AU - Bone, Lee
AU - Byiringiro, Samuel
AU - Lacanienta, Cyd
AU - Clark, Roger
AU - Weston, Christine
AU - Han, Hae Ra
AU - Terkowitz, Mia
AU - Bates-Hopkins, Barbara
AU - Galiatsatos, Panagis
AU - Xu, Ashley Jingzhi
AU - Stevens, Sarah
AU - Himmelfarb, Cheryl R.
N1 - Publisher Copyright:
© The Author(s), 2023. Published by Cambridge University Press on behalf of The Association for Clinical and Translational Science.
PY - 2023/7/28
Y1 - 2023/7/28
N2 - The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.
AB - The Community Research Advisory Council (C-RAC) of the Johns Hopkins Institute for Clinical and Translational Research was established in 2009 to provide community-engaged research consultation services. In 2016-2017, C-RAC members and researchers were surveyed on their consultation experiences. Survey results and a 2019 stakeholder meeting proceeding helped redesign the consultation services. Transitioning to virtual consultations during COVID-19, the redesigning involved increasing visibility, providing consultation materials in advance, expanding member training, and effective communications. An increase in consultations from 28 (2009-2017) to 114 (2020-2022) was observed. Implementing stakeholder-researcher inputs is critical to holistic and sustained community-engaged research.
KW - Translational research
KW - community advisory board
KW - community engagement
KW - consultation service
KW - research continuum
UR - http://www.scopus.com/inward/record.url?scp=85167841502&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85167841502&partnerID=8YFLogxK
U2 - 10.1017/cts.2023.600
DO - 10.1017/cts.2023.600
M3 - Article
C2 - 37654776
AN - SCOPUS:85167841502
SN - 2059-8661
VL - 7
JO - Journal of Clinical and Translational Science
JF - Journal of Clinical and Translational Science
IS - 1
M1 - e177
ER -