HIV, breast cancer and vaccines: What do high-profile cases reveal about stakeholder engagement in research?

Stephanie R. Morain, Thomas W. Concannon, Eve Wittenberg

Research output: Contribution to journalReview articlepeer-review

Abstract

Substantially engaging stakeholders in research involves making extensive changes to the full life cycle of research, from the initial stage of selecting research priorities to the final stages of dissemination and implementation. Recent scholarship has explored logistical and methodological challenges, including the time, training and resources required for engagement. However, inadequate attention has been given to the intended ends or goals of engagement - what do we want engagement to achieve? An examination of historical case studies can yield important insights regarding engagement and its intended ends. Using historical perspective methods, we explore how clarity about the ends of engagement can inform the design of engagement efforts and lead to better outcomes. We present several lessons for improving stakeholder-engaged research.

Original languageEnglish (US)
Pages (from-to)43-49
Number of pages7
JournalJournal of Comparative Effectiveness Research
Volume6
Issue number1
DOIs
StatePublished - Jan 2017
Externally publishedYes

Keywords

  • Breast cancer
  • HIV/AIDS
  • Health policy
  • Health services research/methods
  • Patient engagement
  • Population health
  • Research
  • Stakeholder engagement
  • Vaccination

ASJC Scopus subject areas

  • Health Policy

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