TY - JOUR
T1 - Fostering Effective Asthma Self-Management Transfer in High-Risk Children
T2 - Gaps and Opportunities for Family Engagement
AU - Margolis, Rachel H.F.
AU - Bellin, Melissa H.
AU - Bookman, Jaclyn R.Mac Farlane
AU - Collins, Kathryn S.
AU - Bollinger, Mary Elizabeth
AU - Lewis-Land, Cassia
AU - Butz, Arlene M.
N1 - Funding Information:
This study was funded by the National Institute of Nursing Research, National Institutes of Health (NIH; grant no. R01 NR013486). The study is registered with ClinicalTrials.gov (no. NCT01981564). This publication was made possible by the Johns Hopkins Institute for Clinical and Translational Research, which is funded in part by grant no. UL1 TR 000424-06 from the National Center for Advancing Translational Sciences, a component of the NIH, and NIH Roadmap for Medical Research.
Publisher Copyright:
© 2019 National Association of Pediatric Nurse Practitioners
PY - 2019/11/1
Y1 - 2019/11/1
N2 - Introduction: The process of self-management knowledge, behavior, and skill development in children with asthma from families with low income is understudied. Method: Fifteen mothers of children with uncontrolled asthma participated in semistructured interviews exploring the transfer of asthma self-management responsibilities from parent to child. Team members performed thematic analysis of written transcripts. Results: All participants were all the biological mothers and were impoverished, with most (73%) reporting an annual family income of less than $30,000. Their children ranged from 5 to 15 years old, were African American (100%), and had uncontrolled asthma based on national guidelines. Themes showed that child asthma self-management is difficult to achieve, that the transfer of asthma responsibility from mother to child is variable, and that mothers overestimate their child's developmental capacities for independent asthma self-management and have poor understanding of what well-controlled asthma means. Discussion: Ongoing assessment and tailored guidance from health care providers are critical to support the pivotal role of mothers in their child's self-management development process.
AB - Introduction: The process of self-management knowledge, behavior, and skill development in children with asthma from families with low income is understudied. Method: Fifteen mothers of children with uncontrolled asthma participated in semistructured interviews exploring the transfer of asthma self-management responsibilities from parent to child. Team members performed thematic analysis of written transcripts. Results: All participants were all the biological mothers and were impoverished, with most (73%) reporting an annual family income of less than $30,000. Their children ranged from 5 to 15 years old, were African American (100%), and had uncontrolled asthma based on national guidelines. Themes showed that child asthma self-management is difficult to achieve, that the transfer of asthma responsibility from mother to child is variable, and that mothers overestimate their child's developmental capacities for independent asthma self-management and have poor understanding of what well-controlled asthma means. Discussion: Ongoing assessment and tailored guidance from health care providers are critical to support the pivotal role of mothers in their child's self-management development process.
KW - Asthma
KW - health beliefs
KW - poverty
KW - self-management
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U2 - 10.1016/j.pedhc.2019.05.004
DO - 10.1016/j.pedhc.2019.05.004
M3 - Article
C2 - 31253454
AN - SCOPUS:85067687155
SN - 0891-5245
VL - 33
SP - 684
EP - 693
JO - Journal of Pediatric Health Care
JF - Journal of Pediatric Health Care
IS - 6
ER -