TY - JOUR
T1 - End-of-Life Experiences Among ‘‘Kinless’’ Older Adults
T2 - A Nationwide Register-Based Study
AU - Mair, Christine A.
AU - Thygesen, Lau C.
AU - Aldridge, Melissa
AU - Tay, Djin L.
AU - Ornstein, Katherine A.
N1 - Funding Information:
This work was supported by National Institute on Aging K01AG047923 to Katherine A. Ornstein and the National Palliative Care Research Center to Katherine A. Ornstein.
Publisher Copyright:
© Mary Ann Liebert, Inc.
PY - 2023/8/1
Y1 - 2023/8/1
N2 - Background: The population of older adults who are unpartnered and childless (i.e., ‘‘kinless’’) is increasing across the globe, and may be at risk for lower quality end-of-life (EoL) experiences due to lack of family support, assistance, and advocacy. Yet, little research exists on the EoL experiences of ‘‘kinless’’ older adults. Objectives: To document associations between family structure (i.e., presence or absence of partner or child) and intensity of EoL experiences (i.e., visits to medicalized settings before death). Design: The study design is a cross-sectional population-based register study of the population of Denmark. Subjects: Participants include all adults age 60 years and older who died of natural causes in Denmark from 2009 to 2016 (n = 137,599 decedents). Results: ‘‘Kinless’’ older adults (reference = has partner, has child) were the least likely group to visit the hospital (two or more times; odds ratio [OR] = 0.74, confidence interval [CI] = 0.70–0.77), emergency department (one or more times; OR = 0.90, CI = 0.86–0.93), and intensive care unit (one or more times; OR = 0.71, CI = 0.67–0.75) before death. Conclusions: ‘‘Kinless’’ older adults in Denmark were less likely to experience medically intensive care at the EoL. Further research is needed to understand factors associated with this pattern to ensure that all individuals receive high quality EoL care regardless of their family structure and family tie availability.
AB - Background: The population of older adults who are unpartnered and childless (i.e., ‘‘kinless’’) is increasing across the globe, and may be at risk for lower quality end-of-life (EoL) experiences due to lack of family support, assistance, and advocacy. Yet, little research exists on the EoL experiences of ‘‘kinless’’ older adults. Objectives: To document associations between family structure (i.e., presence or absence of partner or child) and intensity of EoL experiences (i.e., visits to medicalized settings before death). Design: The study design is a cross-sectional population-based register study of the population of Denmark. Subjects: Participants include all adults age 60 years and older who died of natural causes in Denmark from 2009 to 2016 (n = 137,599 decedents). Results: ‘‘Kinless’’ older adults (reference = has partner, has child) were the least likely group to visit the hospital (two or more times; odds ratio [OR] = 0.74, confidence interval [CI] = 0.70–0.77), emergency department (one or more times; OR = 0.90, CI = 0.86–0.93), and intensive care unit (one or more times; OR = 0.71, CI = 0.67–0.75) before death. Conclusions: ‘‘Kinless’’ older adults in Denmark were less likely to experience medically intensive care at the EoL. Further research is needed to understand factors associated with this pattern to ensure that all individuals receive high quality EoL care regardless of their family structure and family tie availability.
KW - aging
KW - end-of-life
KW - family
UR - http://www.scopus.com/inward/record.url?scp=85168221233&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85168221233&partnerID=8YFLogxK
U2 - 10.1089/jpm.2022.0490
DO - 10.1089/jpm.2022.0490
M3 - Article
C2 - 36893217
AN - SCOPUS:85168221233
SN - 1096-6218
VL - 26
SP - 1056
EP - 1063
JO - Journal of palliative medicine
JF - Journal of palliative medicine
IS - 8
ER -