TY - JOUR
T1 - Digital Wings
T2 - Innovations in Transplant Readiness for Adolescent and Young Adult Transplant Recipients
AU - Mogul, Douglas Bradford
AU - Fredericks, Emily M.
AU - Brady, Tammy M.
AU - Miloh, Tamir
AU - Riekert, Kristin
AU - Williams, Natalie
AU - Ford, Ryan
AU - Fergusson, Michael
AU - Kosmach-Park, Beverly
AU - Hochstein, Jon
AU - Naraparaju, Gayathri
AU - Henderson, Macey
AU - Segev, Dorry
AU - Bridges, John
N1 - Funding Information:
This symposium was funded through an Innovation Award from the Johns Hopkins Children’s Center. The authors acknowledge Naureen Islam and Kim Kafka, study coordinators for the Pediatric Liver Center at Johns Hopkins University, for facilitating the evaluation of the Digital Wings Symposium. Dr. Mogul is supported by grant number 5K08HS023876-02 from the Agency for Healthcare Research and Quality. Dr. Henderson is supported by grant number K01DK114388 from the National Institute of Diabetes and Digestive and Kidney Diseases.
Funding Information:
This symposium was supported by a grant from the Department of Pediatrics of the Johns Hopkins University School of Medicine.
Publisher Copyright:
© 2019 Wolters Kluwer Health, Inc. All rights reserved.
PY - 2019/10/1
Y1 - 2019/10/1
N2 - The Johns Hopkins University School of Medicine organized 2 multistakeholder symposia on February 2, 2018 and January 11, 2019 to address the problem of high graft failure in adolescent and young adult (AYA) solid organ transplant (SOT) recipients. Participants included international experts in transplantation, behavioral psychology, patient/parent advocacy, and technology. The objectives of the symposia were as follows: (1) to identify and discuss the barriers to and facilitators of effective transfer of care for AYA SOT recipients; (2) to actively explore strategies and digital solutions to promote their successful transfer of care; and (3) to develop meaningful partnerships for the successful development, evaluation, implementation, and dissemination of these digital solutions. Additionally, data were collected from 152 AYA SOT recipients demonstrating a substantial gap in how this population uses technologies for health-related activities, alongside an increased interest in an app to help them manage their transplant.
AB - The Johns Hopkins University School of Medicine organized 2 multistakeholder symposia on February 2, 2018 and January 11, 2019 to address the problem of high graft failure in adolescent and young adult (AYA) solid organ transplant (SOT) recipients. Participants included international experts in transplantation, behavioral psychology, patient/parent advocacy, and technology. The objectives of the symposia were as follows: (1) to identify and discuss the barriers to and facilitators of effective transfer of care for AYA SOT recipients; (2) to actively explore strategies and digital solutions to promote their successful transfer of care; and (3) to develop meaningful partnerships for the successful development, evaluation, implementation, and dissemination of these digital solutions. Additionally, data were collected from 152 AYA SOT recipients demonstrating a substantial gap in how this population uses technologies for health-related activities, alongside an increased interest in an app to help them manage their transplant.
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U2 - 10.1097/TP.0000000000002749
DO - 10.1097/TP.0000000000002749
M3 - Article
C2 - 30985578
AN - SCOPUS:85072746973
SN - 0041-1337
VL - 103
SP - 1970
EP - 1974
JO - Transplantation
JF - Transplantation
IS - 10
ER -