TY - JOUR
T1 - Developmental Care for Hospitalized Infants With Complex Congenital Heart Disease
T2 - A Science Advisory From the American Heart Association
AU - American Heart Association Pediatric Cardiovascular Nursing Committee of the Council on Cardiovascular and Stroke Nursing
AU - Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Council on Hypertension
AU - Lisanti, Amy Jo
AU - Uzark, Karen C.
AU - Harrison, Tondi M.
AU - Peterson, Jennifer K.
AU - Butler, Samantha C.
AU - Miller, Thomas A.
AU - Allen, Kiona Y.
AU - Miller, Steven P.
AU - Jones, Courtney E.
N1 - Publisher Copyright:
© 2023 The Authors.
PY - 2023/2/7
Y1 - 2023/2/7
N2 - Developmental disorders, disabilities, and delays are a common outcome for individuals with complex congenital heart disease, yet targeting early factors influencing these conditions after birth and during the neonatal hospitalization for cardiac surgery remains a critical need. The purpose of this science advisory is to (1) describe the burden of developmental disorders, disabilities, and delays for infants with complex congenital heart disease, (2) define the potential health and neurodevelopmental benefits of developmental care for infants with complex congenital heart disease, and (3) identify critical gaps in research aimed at evaluating developmental care interventions to improve neurodevelopmental outcomes in complex congenital heart disease. This call to action targets research scientists, clinicians, policymakers, government agencies, advocacy groups, and health care organization leadership to support funding and hospital-based infrastructure for developmental care in the complex congenital heart disease population. Prioritization of research on and implementation of developmental care interventions in this population should be a major focus in the next decade.
AB - Developmental disorders, disabilities, and delays are a common outcome for individuals with complex congenital heart disease, yet targeting early factors influencing these conditions after birth and during the neonatal hospitalization for cardiac surgery remains a critical need. The purpose of this science advisory is to (1) describe the burden of developmental disorders, disabilities, and delays for infants with complex congenital heart disease, (2) define the potential health and neurodevelopmental benefits of developmental care for infants with complex congenital heart disease, and (3) identify critical gaps in research aimed at evaluating developmental care interventions to improve neurodevelopmental outcomes in complex congenital heart disease. This call to action targets research scientists, clinicians, policymakers, government agencies, advocacy groups, and health care organization leadership to support funding and hospital-based infrastructure for developmental care in the complex congenital heart disease population. Prioritization of research on and implementation of developmental care interventions in this population should be a major focus in the next decade.
KW - AHA Scientific Statements
KW - congenital heart disease
KW - developmental care
KW - family-centered care
KW - infant
KW - neurodevelopment
UR - http://www.scopus.com/inward/record.url?scp=85147536465&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85147536465&partnerID=8YFLogxK
U2 - 10.1161/JAHA.122.028489
DO - 10.1161/JAHA.122.028489
M3 - Article
C2 - 36648070
AN - SCOPUS:85147536465
SN - 2047-9980
VL - 12
JO - Journal of the American Heart Association
JF - Journal of the American Heart Association
IS - 3
M1 - e028489
ER -