TY - GEN
T1 - Designing Software for Genomics Medicine Service Leaders to Engage Stakeholders
AU - Coffen-Burke, Juandalyn
AU - Yang, Kai Wen K.
AU - Lkhagvajav, Zoljargal
AU - Lu, Yuzhi L.
AU - Segbefia, Tamisha Dzifa
AU - Wang, Natalie
AU - Stevenson, James Michael
AU - Taylor, Casey Overby
N1 - Publisher Copyright:
© 2023 IEEE.
PY - 2023
Y1 - 2023
N2 - Background: Stakeholder engagement can be challenging yet is critically important for the success of a new genomic medicine service or genetic test offering. Services may include ordering, analysis, interpretation, and counseling associated with using a patient's genetic information to make decisions about medical choices. Objective: The aim of this study was to use a human-centered design (HCD) approach to design software for genomic medicine service leaders seeking to engage stakeholders. Of particular interest were stakeholders that could be partners to champion a new genetic test offering. Methods: Our HCD process was driven by a modified design sprint methodology involving participatory design sessions and semi-structured interviews with experts. Subsequently, we created a low-fidelity prototype aiming to facilitate early engagement with potential genomic medicine service partners. The prototype was used to test the design with current genomic medicine service leaders. To guide our evaluation, we developed a set of design considerations for the software application that reflected common strategies used by programs successfully implementing genetic test offerings in diverse settings. Results: We analyzed notes collected from interview sessions with seven genomic medicine service leaders. We identified ten sub-themes, synthesized corresponding notes, and focused our interpretations around three design considerations: #1-identify potential genomic medicine service partners to champion a new genetic test offering; #2-train and educate stakeholders; and #3-obtain and use genomic medicine partner feedback. The top three ranked sub-themes were: 1 - add new information, 2 - general approval, and 3 - add/change functionality. Conclusion: Our findings suggest that genomic medicine service leaders approve of our software design and process to facilitate key stakeholders' review and endorsement of a new genetic test offering. We also demonstrated an evaluation strategy that draws from lessons of successful genomic medicine programs to identify and prioritize areas to improve the software in future design iterations.
AB - Background: Stakeholder engagement can be challenging yet is critically important for the success of a new genomic medicine service or genetic test offering. Services may include ordering, analysis, interpretation, and counseling associated with using a patient's genetic information to make decisions about medical choices. Objective: The aim of this study was to use a human-centered design (HCD) approach to design software for genomic medicine service leaders seeking to engage stakeholders. Of particular interest were stakeholders that could be partners to champion a new genetic test offering. Methods: Our HCD process was driven by a modified design sprint methodology involving participatory design sessions and semi-structured interviews with experts. Subsequently, we created a low-fidelity prototype aiming to facilitate early engagement with potential genomic medicine service partners. The prototype was used to test the design with current genomic medicine service leaders. To guide our evaluation, we developed a set of design considerations for the software application that reflected common strategies used by programs successfully implementing genetic test offerings in diverse settings. Results: We analyzed notes collected from interview sessions with seven genomic medicine service leaders. We identified ten sub-themes, synthesized corresponding notes, and focused our interpretations around three design considerations: #1-identify potential genomic medicine service partners to champion a new genetic test offering; #2-train and educate stakeholders; and #3-obtain and use genomic medicine partner feedback. The top three ranked sub-themes were: 1 - add new information, 2 - general approval, and 3 - add/change functionality. Conclusion: Our findings suggest that genomic medicine service leaders approve of our software design and process to facilitate key stakeholders' review and endorsement of a new genetic test offering. We also demonstrated an evaluation strategy that draws from lessons of successful genomic medicine programs to identify and prioritize areas to improve the software in future design iterations.
KW - genomic medicine
KW - human-centered design
KW - organizational readiness
KW - software design
KW - stakeholder engagement
UR - http://www.scopus.com/inward/record.url?scp=85181568323&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85181568323&partnerID=8YFLogxK
U2 - 10.1109/ICHI57859.2023.00059
DO - 10.1109/ICHI57859.2023.00059
M3 - Conference contribution
AN - SCOPUS:85181568323
T3 - Proceedings - 2023 IEEE 11th International Conference on Healthcare Informatics, ICHI 2023
SP - 398
EP - 406
BT - Proceedings - 2023 IEEE 11th International Conference on Healthcare Informatics, ICHI 2023
PB - Institute of Electrical and Electronics Engineers Inc.
T2 - 11th IEEE International Conference on Healthcare Informatics, ICHI 2023
Y2 - 26 June 2023 through 29 June 2023
ER -