Current developmental screening practices in young children with sickle cell disease

Chibuzo J. Aguwa, Alicia D. Cannon, James F. Casella, Bruce K. Shapiro, Eboni I. Lance

Research output: Contribution to journalArticlepeer-review


Despite recent developmental screening guidelines, rates of neurodevelopmental disorders (NDDs) remain lower than expected in children with sickle cell disease (SCD). A retrospective chart review identified 276 eligible patients; 214 charts were available for developmental screening and 207 charts for autism-specific screening. Developmental surveillance/screening was conducted in 70% of charts and autism-specific screening in 19% of charts. Validated tools were used in 32% of developmental screenings and 92% of autism-specific screenings. Many children (57%) were screened outside recommended ages. In conclusion, children with SCD are not regularly receiving appropriate developmental screening and surveillance by their healthcare providers.

Original languageEnglish (US)
Pages (from-to)377-380
Number of pages4
JournalBritish journal of haematology
Issue number3
StatePublished - Feb 2023


  • paediatrics
  • sickle cell anaemia
  • sickle cell disease

ASJC Scopus subject areas

  • Hematology


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