Current developmental screening practices in young children with sickle cell disease

Chibuzo J. Aguwa; Alicia D. Cannon; James F. Casella; Bruce K. Shapiro; Eboni I. Lance

doi:10.1111/bjh.18575

Current developmental screening practices in young children with sickle cell disease

Chibuzo J. Aguwa, Alicia D. Cannon, James F. Casella, Bruce K. Shapiro, Eboni I. Lance

Research output: Contribution to journal › Article › peer-review

Abstract

Despite recent developmental screening guidelines, rates of neurodevelopmental disorders (NDDs) remain lower than expected in children with sickle cell disease (SCD). A retrospective chart review identified 276 eligible patients; 214 charts were available for developmental screening and 207 charts for autism-specific screening. Developmental surveillance/screening was conducted in 70% of charts and autism-specific screening in 19% of charts. Validated tools were used in 32% of developmental screenings and 92% of autism-specific screenings. Many children (57%) were screened outside recommended ages. In conclusion, children with SCD are not regularly receiving appropriate developmental screening and surveillance by their healthcare providers.

Original language	English (US)
Pages (from-to)	377-380
Number of pages	4
Journal	British journal of haematology
Volume	200
Issue number	3
DOIs	https://doi.org/10.1111/bjh.18575
State	Published - Feb 2023

Keywords

paediatrics
sickle cell anaemia
sickle cell disease

ASJC Scopus subject areas

Hematology

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10.1111/bjh.18575

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title = "Current developmental screening practices in young children with sickle cell disease",

abstract = "Despite recent developmental screening guidelines, rates of neurodevelopmental disorders (NDDs) remain lower than expected in children with sickle cell disease (SCD). A retrospective chart review identified 276 eligible patients; 214 charts were available for developmental screening and 207 charts for autism-specific screening. Developmental surveillance/screening was conducted in 70% of charts and autism-specific screening in 19% of charts. Validated tools were used in 32% of developmental screenings and 92% of autism-specific screenings. Many children (57%) were screened outside recommended ages. In conclusion, children with SCD are not regularly receiving appropriate developmental screening and surveillance by their healthcare providers.",

keywords = "paediatrics, sickle cell anaemia, sickle cell disease",

author = "Aguwa, {Chibuzo J.} and Cannon, {Alicia D.} and Casella, {James F.} and Shapiro, {Bruce K.} and Lance, {Eboni I.}",

note = "Publisher Copyright: {\textcopyright} 2022 British Society for Haematology and John Wiley & Sons Ltd.",

year = "2023",

month = feb,

doi = "10.1111/bjh.18575",

language = "English (US)",

volume = "200",

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T1 - Current developmental screening practices in young children with sickle cell disease

AU - Aguwa, Chibuzo J.

AU - Cannon, Alicia D.

AU - Casella, James F.

AU - Shapiro, Bruce K.

AU - Lance, Eboni I.

PY - 2023/2

Y1 - 2023/2

N2 - Despite recent developmental screening guidelines, rates of neurodevelopmental disorders (NDDs) remain lower than expected in children with sickle cell disease (SCD). A retrospective chart review identified 276 eligible patients; 214 charts were available for developmental screening and 207 charts for autism-specific screening. Developmental surveillance/screening was conducted in 70% of charts and autism-specific screening in 19% of charts. Validated tools were used in 32% of developmental screenings and 92% of autism-specific screenings. Many children (57%) were screened outside recommended ages. In conclusion, children with SCD are not regularly receiving appropriate developmental screening and surveillance by their healthcare providers.

AB - Despite recent developmental screening guidelines, rates of neurodevelopmental disorders (NDDs) remain lower than expected in children with sickle cell disease (SCD). A retrospective chart review identified 276 eligible patients; 214 charts were available for developmental screening and 207 charts for autism-specific screening. Developmental surveillance/screening was conducted in 70% of charts and autism-specific screening in 19% of charts. Validated tools were used in 32% of developmental screenings and 92% of autism-specific screenings. Many children (57%) were screened outside recommended ages. In conclusion, children with SCD are not regularly receiving appropriate developmental screening and surveillance by their healthcare providers.

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KW - sickle cell anaemia

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Current developmental screening practices in young children with sickle cell disease

Abstract

Keywords

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