Considerations for Advanced Heart Failure Consultation in Individuals with Fontan Circulation: Recommendations from ACTION

Adam M. Lubert; Ari Cedars; Christopher S. Almond; Shahnawaz Amdani; Jennifer Conway; Joshua M. Friedland-Little; Robert J. Gajarski; Steven J. Kindel; Angela Lorts; David L.S. Morales; Matthew J. O'Connor; David M. Peng; David N. Rosenthal; Lauren Smyth; David L. Sutcliffe; Kurt R. Schumacher

doi:10.1161/CIRCHEARTFAILURE.122.010123

Considerations for Advanced Heart Failure Consultation in Individuals with Fontan Circulation: Recommendations from ACTION

Adam M. Lubert, Ari Cedars, Christopher S. Almond, Shahnawaz Amdani, Jennifer Conway, Joshua M. Friedland-Little, Robert J. Gajarski, Steven J. Kindel, Angela Lorts, David L.S. Morales, Matthew J. O'Connor, David M. Peng, David N. Rosenthal, Lauren Smyth, David L. Sutcliffe, Kurt R. Schumacher

School of Medicine

Research output: Contribution to journal › Review article › peer-review

Abstract

Individuals with Fontan circulation are at risk of late mortality from both cardiac and noncardiac causes. Despite the known risk of mortality, referral indications for advanced heart failure care vary between centers, and many individuals die from Fontan circulation-related complications either after late consideration for advanced heart failure therapies or having never seen a heart failure specialist. There is a critical need for guidelines to direct appropriately timed referral for advanced heart failure consultation. The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Fontan Committee has developed recommended thresholds for advanced heart failure referral to guide primary cardiologists. These recommendations are divided into 4 categories of clinical Fontan circulatory dysfunction including (1) cardiac/systemic ventricular dysfunction, (2) Fontan pathway dysfunction, (3) lymphatic dysfunction, and (4) extracardiac dysfunction.

Original language	English (US)
Article number	e010123
Journal	Circulation: Heart Failure
Volume	16
Issue number	2
DOIs	https://doi.org/10.1161/CIRCHEARTFAILURE.122.010123
State	Published - Feb 1 2023

Keywords

Fontan procedure
congenital heart disease
heart failure
transplantation
ventricular dysfunction

ASJC Scopus subject areas

Cardiology and Cardiovascular Medicine

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10.1161/CIRCHEARTFAILURE.122.010123

Cite this

Lubert, A. M., Cedars, A., Almond, C. S., Amdani, S., Conway, J., Friedland-Little, J. M., Gajarski, R. J., Kindel, S. J., Lorts, A., Morales, D. L. S., O'Connor, M. J., Peng, D. M., Rosenthal, D. N., Smyth, L., Sutcliffe, D. L., & Schumacher, K. R. (2023). Considerations for Advanced Heart Failure Consultation in Individuals with Fontan Circulation: Recommendations from ACTION. Circulation: Heart Failure, 16(2), Article e010123. https://doi.org/10.1161/CIRCHEARTFAILURE.122.010123

Lubert, AM, Cedars, A, Almond, CS, Amdani, S, Conway, J, Friedland-Little, JM, Gajarski, RJ, Kindel, SJ, Lorts, A, Morales, DLS, O'Connor, MJ, Peng, DM, Rosenthal, DN, Smyth, L, Sutcliffe, DL & Schumacher, KR 2023, 'Considerations for Advanced Heart Failure Consultation in Individuals with Fontan Circulation: Recommendations from ACTION', Circulation: Heart Failure, vol. 16, no. 2, e010123. https://doi.org/10.1161/CIRCHEARTFAILURE.122.010123

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title = "Considerations for Advanced Heart Failure Consultation in Individuals with Fontan Circulation: Recommendations from ACTION",

abstract = "Individuals with Fontan circulation are at risk of late mortality from both cardiac and noncardiac causes. Despite the known risk of mortality, referral indications for advanced heart failure care vary between centers, and many individuals die from Fontan circulation-related complications either after late consideration for advanced heart failure therapies or having never seen a heart failure specialist. There is a critical need for guidelines to direct appropriately timed referral for advanced heart failure consultation. The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Fontan Committee has developed recommended thresholds for advanced heart failure referral to guide primary cardiologists. These recommendations are divided into 4 categories of clinical Fontan circulatory dysfunction including (1) cardiac/systemic ventricular dysfunction, (2) Fontan pathway dysfunction, (3) lymphatic dysfunction, and (4) extracardiac dysfunction.",

keywords = "Fontan procedure, congenital heart disease, heart failure, transplantation, ventricular dysfunction",

author = "Lubert, {Adam M.} and Ari Cedars and Almond, {Christopher S.} and Shahnawaz Amdani and Jennifer Conway and Friedland-Little, {Joshua M.} and Gajarski, {Robert J.} and Kindel, {Steven J.} and Angela Lorts and Morales, {David L.S.} and O'Connor, {Matthew J.} and Peng, {David M.} and Rosenthal, {David N.} and Lauren Smyth and Sutcliffe, {David L.} and Schumacher, {Kurt R.}",

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doi = "10.1161/CIRCHEARTFAILURE.122.010123",

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AU - Lubert, Adam M.

AU - Cedars, Ari

AU - Almond, Christopher S.

AU - Amdani, Shahnawaz

AU - Conway, Jennifer

AU - Friedland-Little, Joshua M.

AU - Gajarski, Robert J.

AU - Kindel, Steven J.

AU - Lorts, Angela

AU - Morales, David L.S.

AU - O'Connor, Matthew J.

AU - Peng, David M.

AU - Rosenthal, David N.

AU - Smyth, Lauren

AU - Sutcliffe, David L.

AU - Schumacher, Kurt R.

PY - 2023/2/1

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N2 - Individuals with Fontan circulation are at risk of late mortality from both cardiac and noncardiac causes. Despite the known risk of mortality, referral indications for advanced heart failure care vary between centers, and many individuals die from Fontan circulation-related complications either after late consideration for advanced heart failure therapies or having never seen a heart failure specialist. There is a critical need for guidelines to direct appropriately timed referral for advanced heart failure consultation. The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Fontan Committee has developed recommended thresholds for advanced heart failure referral to guide primary cardiologists. These recommendations are divided into 4 categories of clinical Fontan circulatory dysfunction including (1) cardiac/systemic ventricular dysfunction, (2) Fontan pathway dysfunction, (3) lymphatic dysfunction, and (4) extracardiac dysfunction.

AB - Individuals with Fontan circulation are at risk of late mortality from both cardiac and noncardiac causes. Despite the known risk of mortality, referral indications for advanced heart failure care vary between centers, and many individuals die from Fontan circulation-related complications either after late consideration for advanced heart failure therapies or having never seen a heart failure specialist. There is a critical need for guidelines to direct appropriately timed referral for advanced heart failure consultation. The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Fontan Committee has developed recommended thresholds for advanced heart failure referral to guide primary cardiologists. These recommendations are divided into 4 categories of clinical Fontan circulatory dysfunction including (1) cardiac/systemic ventricular dysfunction, (2) Fontan pathway dysfunction, (3) lymphatic dysfunction, and (4) extracardiac dysfunction.

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KW - congenital heart disease

KW - heart failure

KW - transplantation

KW - ventricular dysfunction

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Considerations for Advanced Heart Failure Consultation in Individuals with Fontan Circulation: Recommendations from ACTION

Abstract

Keywords

ASJC Scopus subject areas

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