TY - JOUR
T1 - Children's participation in genetic prevalence research
T2 - Influences on enrollment and reports of parent satisfaction
AU - Mazzocco, Michèle M.M.
AU - Harum, Karen H.
AU - Myers, Gwen F.
AU - Reiss, Allan L.
PY - 1999/11
Y1 - 1999/11
N2 - The present studies were designed to evaluate methodological influences on the efficiency of genetic-screening studies, specifically when enrolling preschoolers in a prevalence study of the fragile X full mutation. The studies include replication of earlier findings with school-age children, which showed that (a) a higher enrollment rate occurred when the study was introduced to a parent by a physician (73.7%) versus by a research assistant (58.7%), and (b) parents initially undecided about participating were more likely to eventually enroll if they had completed enrollment forms at the time of recruitment. In-person recruitment led to higher enrollment rates (60%) than did recruitment by mail (36.8%). Feedback from parents indicated the importance of emphasizing the optional nature of participation in screening studies.
AB - The present studies were designed to evaluate methodological influences on the efficiency of genetic-screening studies, specifically when enrolling preschoolers in a prevalence study of the fragile X full mutation. The studies include replication of earlier findings with school-age children, which showed that (a) a higher enrollment rate occurred when the study was introduced to a parent by a physician (73.7%) versus by a research assistant (58.7%), and (b) parents initially undecided about participating were more likely to eventually enroll if they had completed enrollment forms at the time of recruitment. In-person recruitment led to higher enrollment rates (60%) than did recruitment by mail (36.8%). Feedback from parents indicated the importance of emphasizing the optional nature of participation in screening studies.
UR - http://www.scopus.com/inward/record.url?scp=0033216427&partnerID=8YFLogxK
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U2 - 10.1111/j.1559-1816.1999.tb00112.x
DO - 10.1111/j.1559-1816.1999.tb00112.x
M3 - Article
AN - SCOPUS:0033216427
SN - 0021-9029
VL - 29
SP - 2308
EP - 2327
JO - Journal of Applied Social Psychology
JF - Journal of Applied Social Psychology
IS - 11
ER -