Assessing Early Supportive Care Needs among Son or Daughter Haploidentical Transplantation Donors

Research output: Contribution to journalArticlepeer-review

Abstract

Increasingly, adolescent, young adult, and adult children are relied upon as donors for their parents undergoing blood and marrow stem cell transplant. How family functioning impacts donors’ decision making and whether haploidentical donor children have unique supportive care needs is unknown. In this qualitative research study, we conducted 15 semistructured telephone interviews among individuals who underwent blood or marrow stem cell donation for their parent. Interviews explored donors’ perspectives of the transplant experience across the trajectory from screening through early post-transplant follow-up and elicited unmet needs. Major themes included: (1) perception of choice, (2) act of giving back, (3) burdens of donation, (4) anticipated health benefit to parent, and (5) impact of donation on parent/child relationship. The majority of participants described high family functioning, but strain was also evident. Family functioning rarely was reported as affecting the decision to donate, with all donors expressing a sense of obligation. Participants were overwhelmingly satisfied with their decision and the ability to give back to their parent. Suggestions for the health care team to improve the donation experience focused on increased education about potential delays in screening, better description of possible complications for recipients, and provision of emotional support following donation.

Original languageEnglish (US)
Pages (from-to)2121-2126
Number of pages6
JournalBiology of Blood and Marrow Transplantation
Volume26
Issue number11
DOIs
StatePublished - Nov 2020

Keywords

  • Haploidentical child donors
  • Qualitative
  • Supportive care

ASJC Scopus subject areas

  • Hematology
  • Transplantation

Fingerprint

Dive into the research topics of 'Assessing Early Supportive Care Needs among Son or Daughter Haploidentical Transplantation Donors'. Together they form a unique fingerprint.

Cite this