TY - JOUR
T1 - A public health response to emerging technology
T2 - Expansion of the Massachusetts newborn screening program
AU - Atkinson, Kathleen
AU - Zuckerman, Barry
AU - Sharfstein, Joshua M.
AU - Levin, Donna
AU - Blatt, Robin J.R.
AU - Koh, Howard K.
N1 - Funding Information:
The work of Dr. Sharfstein was supported by a Health Research Services Administration Institutional National Service Award (5 T32 HP 10014 07).
PY - 2001
Y1 - 2001
N2 - The development of a new technology, called tandem mass spectrometry (tandem MS), has challenged governments worldwide to consider expanding universal newborn screening for rare metabolic disorders. In 1997 the Massachusetts Department of Public Health developed a public process to meet this challenge. After addressing significant medical, legal, ethical, and logistical issues raised by tandem MS, Massachusetts incorporated one new disorder into the mandatory newborn screen and developed an optional pilot program for 20 additional disorders. The Massachusetts experience has wide relevance for other nations and states. As screening protocols are contemplated for entire populations - for newborns and others-it will remain essential that the public participate in an open process of reviewing the justification for and logistics of screening.
AB - The development of a new technology, called tandem mass spectrometry (tandem MS), has challenged governments worldwide to consider expanding universal newborn screening for rare metabolic disorders. In 1997 the Massachusetts Department of Public Health developed a public process to meet this challenge. After addressing significant medical, legal, ethical, and logistical issues raised by tandem MS, Massachusetts incorporated one new disorder into the mandatory newborn screen and developed an optional pilot program for 20 additional disorders. The Massachusetts experience has wide relevance for other nations and states. As screening protocols are contemplated for entire populations - for newborns and others-it will remain essential that the public participate in an open process of reviewing the justification for and logistics of screening.
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U2 - 10.1093/phr/116.2.122
DO - 10.1093/phr/116.2.122
M3 - Review article
C2 - 11847298
AN - SCOPUS:0035674957
SN - 0033-3549
VL - 116
SP - 122
EP - 131
JO - Public health reports
JF - Public health reports
IS - 2
ER -