A Longitudinal, Qualitative Exploration of Perceived HIV Risk, Healthcare Experiences, and Social Support as Facilitators and Barriers to PrEP Adoption Among Black Women

Liesl A. Nydegger; Julia Dickson-Gomez; Thant Ko Ko

doi:10.1007/s10461-020-03015-9

A Longitudinal, Qualitative Exploration of Perceived HIV Risk, Healthcare Experiences, and Social Support as Facilitators and Barriers to PrEP Adoption Among Black Women

Liesl A. Nydegger
, Julia Dickson-Gomez
, Thant Ko Ko

Research output: Contribution to journal › Article › peer-review

Abstract

Black women contract HIV at much higher rates than White or Hispanic women. Pre-exposure prophylaxis (PrEP) is an underutilized prevention tool among this population. We sought to determine participants’ interest in PrEP and facilitators and barriers to PrEP adoption. This longitudinal, qualitative study included 30 Black women (M_age = 32.2) interviewed 4 times over 6 months. Most participants had never heard of PrEP and a majority expressed initial interest. Barriers to PrEP initiation included low perceived HIV risk, medical mistrust, provider experiences and knowledge, negative reactions from family and friends, low perceived efficacy to adherence, and transportation. This study demonstrated actual, rather than hypothetical, PrEP interest and attitudes among Black women, and the barriers that arose over time during the study. PrEP awareness needs to be promoted among Black women and medical providers. Future research should address individual risk perception, medical mistrust, increasing social support, and decreasing transportation barriers.

Original language	English (US)
Pages (from-to)	582-591
Number of pages	10
Journal	AIDS and behavior
Volume	25
Issue number	2
DOIs	https://doi.org/10.1007/s10461-020-03015-9
State	Published - Feb 2021
Externally published	Yes

Keywords

Black/African-American women
HIV/AIDS
Medical mistrust
Perceived HIV risk
PrEP barriers

ASJC Scopus subject areas

Social Psychology
Public Health, Environmental and Occupational Health
Infectious Diseases

Access to Document

10.1007/s10461-020-03015-9

Cite this

@article{5161351e803f4d559785e66abf75128c,

title = "A Longitudinal, Qualitative Exploration of Perceived HIV Risk, Healthcare Experiences, and Social Support as Facilitators and Barriers to PrEP Adoption Among Black Women",

abstract = "Black women contract HIV at much higher rates than White or Hispanic women. Pre-exposure prophylaxis (PrEP) is an underutilized prevention tool among this population. We sought to determine participants{\textquoteright} interest in PrEP and facilitators and barriers to PrEP adoption. This longitudinal, qualitative study included 30 Black women (Mage = 32.2) interviewed 4 times over 6 months. Most participants had never heard of PrEP and a majority expressed initial interest. Barriers to PrEP initiation included low perceived HIV risk, medical mistrust, provider experiences and knowledge, negative reactions from family and friends, low perceived efficacy to adherence, and transportation. This study demonstrated actual, rather than hypothetical, PrEP interest and attitudes among Black women, and the barriers that arose over time during the study. PrEP awareness needs to be promoted among Black women and medical providers. Future research should address individual risk perception, medical mistrust, increasing social support, and decreasing transportation barriers.",

keywords = "Black/African-American women, HIV/AIDS, Medical mistrust, Perceived HIV risk, PrEP barriers",

author = "Nydegger, \{Liesl A.\} and Julia Dickson-Gomez and \{Ko Ko\}, Thant",

note = "Funding Information: The authors gratefully acknowledge the participants who shared their stories. We also thank the project staff and students at the Medical College of Wisconsin, and Sarah Gojer, MPH and Sabrina Benitez at the University of Texas at Austin who dedicated their time to this research. This research was funded by the National Institute of Mental Health (P30 MH52776 and T32 0MH19985) and supported by grant P2CHD042849 awarded to the Population Research Center at The University of Texas by the Eunice Kennedy Shriver National Institute of Child Health and Human Development. Funding Information: The authors gratefully acknowledge the participants who shared their stories. We also thank the project staff and students at the Medical College of Wisconsin, and Sarah Gojer, MPH and Sabrina Benitez at the University of Texas at Austin who dedicated their time to this research. This research was funded by the National Institute of Mental Health (P30 MH52776 and T32 0MH19985) and supported by grant P2CHD042849 awarded to the Population Research Center at The University of Texas by the Eunice Kennedy Shriver National Institute of Child Health and Human Development. Publisher Copyright: {\textcopyright} 2020, Springer Science+Business Media, LLC, part of Springer Nature.",

year = "2021",

month = feb,

doi = "10.1007/s10461-020-03015-9",

language = "English (US)",

volume = "25",

pages = "582--591",

journal = "AIDS and behavior",

issn = "1090-7165",

publisher = "Springer New York",

number = "2",

}

TY - JOUR

T1 - A Longitudinal, Qualitative Exploration of Perceived HIV Risk, Healthcare Experiences, and Social Support as Facilitators and Barriers to PrEP Adoption Among Black Women

AU - Nydegger, Liesl A.

AU - Dickson-Gomez, Julia

AU - Ko Ko, Thant

N1 - Funding Information: The authors gratefully acknowledge the participants who shared their stories. We also thank the project staff and students at the Medical College of Wisconsin, and Sarah Gojer, MPH and Sabrina Benitez at the University of Texas at Austin who dedicated their time to this research. This research was funded by the National Institute of Mental Health (P30 MH52776 and T32 0MH19985) and supported by grant P2CHD042849 awarded to the Population Research Center at The University of Texas by the Eunice Kennedy Shriver National Institute of Child Health and Human Development. Funding Information: The authors gratefully acknowledge the participants who shared their stories. We also thank the project staff and students at the Medical College of Wisconsin, and Sarah Gojer, MPH and Sabrina Benitez at the University of Texas at Austin who dedicated their time to this research. This research was funded by the National Institute of Mental Health (P30 MH52776 and T32 0MH19985) and supported by grant P2CHD042849 awarded to the Population Research Center at The University of Texas by the Eunice Kennedy Shriver National Institute of Child Health and Human Development. Publisher Copyright: © 2020, Springer Science+Business Media, LLC, part of Springer Nature.

PY - 2021/2

Y1 - 2021/2

N2 - Black women contract HIV at much higher rates than White or Hispanic women. Pre-exposure prophylaxis (PrEP) is an underutilized prevention tool among this population. We sought to determine participants’ interest in PrEP and facilitators and barriers to PrEP adoption. This longitudinal, qualitative study included 30 Black women (Mage = 32.2) interviewed 4 times over 6 months. Most participants had never heard of PrEP and a majority expressed initial interest. Barriers to PrEP initiation included low perceived HIV risk, medical mistrust, provider experiences and knowledge, negative reactions from family and friends, low perceived efficacy to adherence, and transportation. This study demonstrated actual, rather than hypothetical, PrEP interest and attitudes among Black women, and the barriers that arose over time during the study. PrEP awareness needs to be promoted among Black women and medical providers. Future research should address individual risk perception, medical mistrust, increasing social support, and decreasing transportation barriers.

AB - Black women contract HIV at much higher rates than White or Hispanic women. Pre-exposure prophylaxis (PrEP) is an underutilized prevention tool among this population. We sought to determine participants’ interest in PrEP and facilitators and barriers to PrEP adoption. This longitudinal, qualitative study included 30 Black women (Mage = 32.2) interviewed 4 times over 6 months. Most participants had never heard of PrEP and a majority expressed initial interest. Barriers to PrEP initiation included low perceived HIV risk, medical mistrust, provider experiences and knowledge, negative reactions from family and friends, low perceived efficacy to adherence, and transportation. This study demonstrated actual, rather than hypothetical, PrEP interest and attitudes among Black women, and the barriers that arose over time during the study. PrEP awareness needs to be promoted among Black women and medical providers. Future research should address individual risk perception, medical mistrust, increasing social support, and decreasing transportation barriers.

KW - Black/African-American women

KW - HIV/AIDS

KW - Medical mistrust

KW - Perceived HIV risk

KW - PrEP barriers

UR - https://www.scopus.com/pages/publications/85090307965

UR - https://www.scopus.com/pages/publications/85090307965#tab=citedBy

U2 - 10.1007/s10461-020-03015-9

DO - 10.1007/s10461-020-03015-9

M3 - Article

C2 - 32886220

AN - SCOPUS:85090307965

SN - 1090-7165

VL - 25

SP - 582

EP - 591

JO - AIDS and behavior

JF - AIDS and behavior

IS - 2

ER -

A Longitudinal, Qualitative Exploration of Perceived HIV Risk, Healthcare Experiences, and Social Support as Facilitators and Barriers to PrEP Adoption Among Black Women

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this