Research output per year
Research output per year
- 43 results
Search results
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2024
Stakeholder perspectives on data sharing from pragmatic clinical trials: Unanticipated challenges for meeting emerging requirements
Morain, S. R., Bollinger, J., Weinfurt, K. & Sugarman, J., Jan 2024, In: Learning Health Systems. 8, 1, e10366.Research output: Contribution to journal › Article › peer-review
Open Access -
The ethics of using COVID-19 host genomic information for clinical and public health decision-making: A survey of US health professionals
Jose, S., Geller, G., Bollinger, J., Mathews, D., Kahn, J. & Garibaldi, B. T., Jan 11 2024, In: Human Genetics and Genomics Advances. 5, 1, 100255.Research output: Contribution to journal › Article › peer-review
Open Access -
2023
Brief Report: Challenges in Obtaining the Informed Perspectives of Stakeholders Regarding HIV Molecular Epidemiology
Bollinger, J. M., Geller, G., May, E., Brewer, J., Henry, L. M. & Sugarman, J., Jun 1 2023, In: Journal of Acquired Immune Deficiency Syndromes. 93, 2, p. 87-91 5 p.Research output: Contribution to journal › Article › peer-review
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Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability
Guerrini, C. J., Majumder, M. A., Robinson, J. O., Cook-Deegan, R., Blank, M., Bollinger, J., Geary, J., Gutierrez, A. M., Shrikant, M. & McGuire, A. L., Feb 6 2023, In: Frontiers in Big Data. 6, 1095119.Research output: Contribution to journal › Article › peer-review
Open Access -
Policy options to facilitate cancer genomic variant data sharing: outcomes of a modified policy Delphi
Robinson, J. O., Daoud, A., Geary, J., Rahimzadeh, V., Bollinger, J., Guerrini, C. J., Cook-Deegan, R., McGuire, A. L. & Majumder, M. A., Jul 1 2023, In: Journal of Law and the Biosciences. 10, 2, lsad022.Research output: Contribution to journal › Article › peer-review
Open Access -
2022
Ethics challenges in sharing data from pragmatic clinical trials
Morain, S. R., Bollinger, J., Weinfurt, K. & Sugarman, J., Dec 2022, In: Clinical Trials. 19, 6, p. 681-689 9 p.Research output: Contribution to journal › Article › peer-review
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HOPE in action: A prospective multicenter pilot study of liver transplantation from donors with HIV to recipients with HIV
the HOPE in Action Investigators, Mar 2022, In: American Journal of Transplantation. 22, 3, p. 853-864 12 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Identifying Needs, Challenges, and Benefits among Adults and Parents of Children with Hirschsprung Disease
Berrios, C., Bollinger, J., Yan, J., Biesecker, B. & Chakravarti, A., May 1 2022, In: Journal of pediatric gastroenterology and nutrition. 74, 5, p. E103-E108Research output: Contribution to journal › Article › peer-review
Open Access -
National Landscape of Human Immunodeficiency Virus-Positive Deceased Organ Donors in the United States
Werbel, W. A., Brown, D. M., Kusemiju, O. T., Doby, B. L., Seaman, S. M., Redd, A., Eby, Y., Fernandez, R. E., Desai, N., Miller, J., Bismut, G. A., Kirby, C. S., Schmidt, H. A., Clarke, W. A., Seisa, M., Petropoulos, C. J., Quinn, T. C., Florman, S. S., Huprikar, S., Rana, M. M., & 95 others, Jun 1 2022, In: Clinical Infectious Diseases. 74, 11, p. 2010-2019 10 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Patients’ Reactions to Letters Communicating Collateral Findings of Pragmatic Clinical Trials: a National Web-Based Survey
Weinfurt, K. P., Bollinger, J. M., May, E., Geller, G., Mathews, D. J. H., Morain, S. R., Schmid, L., Bloom, D. L. & Sugarman, J., May 2022, In: Journal of general internal medicine. 37, 7, p. 1658-1664 7 p.Research output: Contribution to journal › Article › peer-review
Open Access -
2021
A scoping review of genetics and genomics research ethics policies and guidelines for Africa
Ali, J., Cohn, B., Mwaka, E., Bollinger, J. M., Kwagala, B., Barugahare, J., Sewankambo, N. K. & Ochieng, J., Dec 2021, In: BMC Medical Ethics. 22, 1, 39.Research output: Contribution to journal › Article › peer-review
Open Access -
Challenges to building a gene variant commons to assess hereditary cancer risk: Results of a modified policy delphi panel deliberation
Majumder, M. A., Blank, M. L., Geary, J., Bollinger, J. M., Guerrini, C. J., Robinson, J. O., Canfield, I., Cook-Deegan, R. & McGuire, A. L., Jul 2021, In: Journal of Personalized Medicine. 11, 7, 646.Research output: Contribution to journal › Article › peer-review
Open Access -
Identification and management of pragmatic clinical trial collateral findings: A current understanding and directions for future research
Morain, S. R., Mathews, D. J. H., Geller, G., Bollinger, J., Weinfurt, K., Jarvik, J. G., May, E. & Sugarman, J., Dec 2021, In: Healthcare. 9, 4, 100586.Research output: Contribution to journal › Article › peer-review
Open Access -
Incidence and Outcomes of COVID-19 in Kidney and Liver Transplant Recipients With HIV: Report From the National HOPE in Action Consortium
HOPE in Action Investigators, Jan 1 2021, In: Transplantation. 105, 1, p. 216-224 9 p.Research output: Contribution to journal › Article › peer-review
Open Access3 Scopus citations -
Multiple, independent, common variants at RET, SEMA3 and NRG1 gut enhancers specify Hirschsprung disease risk in European ancestry subjects
The Hirschsprung Disease Research Collaborative (HDRC), Dec 2021, In: Journal of pediatric surgery. 56, 12, p. 2286-2294 9 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Patients' perspectives on the derivation and use of organoids
Bollinger, J., May, E., Mathews, D., Donowitz, M. & Sugarman, J., Aug 10 2021, In: Stem Cell Reports. 16, 8, p. 1874-1883 10 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Stakeholder perspectives regarding pragmatic clinical trial collateral findings
Morain, S. R., Mathews, D. J. H., Weinfurt, K., May, E., Bollinger, J. M., Geller, G. & Sugarman, J., Oct 2021, In: Learning Health Systems. 5, 4, e10245.Research output: Contribution to journal › Article › peer-review
Open Access -
Whether, when, and how to communicate genetic risk to minors: ‘I wanted more information but I think they were scared I couldn’t handle it’
Stuttgen, K., McCague, A., Bollinger, J., Dvoskin, R. & Mathews, D., Feb 2021, In: Journal of Genetic Counseling. 30, 1, p. 237-245 9 p.Research output: Contribution to journal › Article › peer-review
1 Scopus citations -
2020
Ethics and Collateral Findings in Pragmatic Clinical Trials
Morain, S. R., Weinfurt, K., Bollinger, J., Geller, G., Mathews, D. J. H. & Sugarman, J., Jan 2 2020, In: American Journal of Bioethics. 20, 1, p. 6-18 13 p.Research output: Contribution to journal › Article › peer-review
6 Scopus citations -
Family Communication Patterns and Challenges of Huntington's Disease Risk, the Decision to Pursue Presymptomatic Testing, and Test Results
Stuttgen, K., Bollinger, J., McCague, A., Dvoskin, R. & Mathews, D., 2020, In: Journal of Huntington's Disease. 9, 3, p. 265-274 10 p.Research output: Contribution to journal › Article › peer-review
Open Access1 Scopus citations -
Patients’ Views About the Disclosure of Collateral Findings in Pragmatic Clinical Trials: a Focus Group Study
Bollinger, J. M., Geller, G., Weinfurt, K., May, E., Morain, S. R., Mathews, D. J. H. & Sugarman, J., Dec 2020, In: Journal of general internal medicine. 35, 12, p. 3436-3442 7 p.Research output: Contribution to journal › Article › peer-review
Open Access1 Scopus citations -
2019
Early experiences of independent advocates for potential HIV+ recipients of HIV+ donor organ transplants
Bollinger, J. M., Eno, A., Seaman, S., Brown, D., Van Pilsum Rasmussen, S. E., Tobian, A. A. R., Segev, D. L., Durand, C. M. & Sugarman, J., Jul 2019, In: Clinical Transplantation. 33, 7, e13617.Research output: Contribution to journal › Article › peer-review
Open Access1 Scopus citations -
Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons
McGuire, A. L., Majumder, M. A., Villanueva, A. G., Bardill, J., Bollinger, J. M., Boerwinkle, E., Bubela, T., Deverka, P., Evans, B. J., Garrison, N. A., Glazer, D., Goldstein, M. M., Greely, H. T., Kahn, S. D., Knoppers, B. M., Koenig, B. A., Lambright, J. M., Mattison, J. E., O'Donnell, C., Rai, A. K., & 7 others, Mar 1 2019, In: Journal of Law, Medicine and Ethics. 47, 1, p. 12-20 9 p.Research output: Contribution to journal › Article › peer-review
Open Access -
The Role of Participants in a Medical Information Commons
Majumder, M. A., Bollinger, J. M., Villanueva, A. G., Deverka, P. A. & Koenig, B. A., Mar 1 2019, In: Journal of Law, Medicine and Ethics. 47, 1, p. 51-61 11 p.Research output: Contribution to journal › Article › peer-review
Open Access -
2018
Enrolling Genomics Research Participants through a Clinical Setting: the Impact of Existing Clinical Relationships on Informed Consent and Expectations for Return of Research Results
Berrios, C., James, C. A., Raraigh, K., Bollinger, J., Murray, B., Tichnell, C., Applegate, C. D. & Bergner, A. L., Feb 1 2018, In: Journal of Genetic Counseling. 27, 1, p. 263-273 11 p.Research output: Contribution to journal › Article › peer-review
7 Scopus citations -
Perceptions, motivations, and concerns about living organ donation among people living with HIV
Van Pilsum Rasmussen, S. E., Henderson, M. L., Bollinger, J., Seaman, S., Brown, D., Durand, C. M., Segev, D. L. & Sugarman, J., Dec 2 2018, In: AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV. 30, 12, p. 1595-1599 5 p.Research output: Contribution to journal › Article › peer-review
Open Access5 Scopus citations -
Perspectives on Genetic Testing and Return of Results from the First Cohort of Presymptomatically Tested Individuals At Risk of Huntington Disease
Stuttgen, K. M., Bollinger, J. M., Dvoskin, R. L., McCague, A., Shpritz, B., Brandt, J. & Mathews, D. J. H., Dec 1 2018, In: Journal of Genetic Counseling. 27, 6, p. 1428-1437 10 p.Research output: Contribution to journal › Article › peer-review
Open Access2 Scopus citations -
Risk perception before and after presymptomatic genetic testing for Huntington's disease: Not always what one might expect
Stuttgen, K., Dvoskin, R., Bollinger, J., McCague, A., Shpritz, B., Brandt, J. & Mathews, D., Nov 2018, In: Molecular Genetics and Genomic Medicine. 6, 6, p. 1140-1147 8 p.Research output: Contribution to journal › Article › peer-review
Open Access2 Scopus citations -
2017
Barriers to clinical adoption of nextgeneration sequencing: A policy Delphi panel's solutions
Messner, D. A., Koay, P., Al Naber, J., Cook-Deegan, R., Majumder, M., Javitt, G., Dvoskin, R., Bollinger, J., Curnutte, M. & McGuire, A. L., Jul 2017, In: Personalized Medicine. 14, 4, p. 339-354 16 p.Research output: Contribution to journal › Article › peer-review
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Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease
Fiallos, K., Applegate, C., Mathews, D. J. H., Bollinger, J., Bergner, A. L. & James, C. A., May 1 2017, In: European Journal of Human Genetics. 25, 5, p. 530-537 8 p.Research output: Contribution to journal › Article › peer-review
Open Access19 Scopus citations -
Comparison of Approaches for Notification and Authorization in Pragmatic Clinical Research Evaluating Commonly Used Medical Practices
Weinfurt, K. P., Bollinger, J. M., Brelsford, K. M., Bresciani, M., Lampron, Z., Lin, L., Topazian, R. J. & Sugarman, J., 2017, In: Medical care. 55, 11, p. 970-978 9 p.Research output: Contribution to journal › Article › peer-review
Open Access5 Scopus citations -
Constraints on gene patent protection fuel secrecy concerns: A qualitative study
Guerrini, C. J., McGuire, A. L., Majumder, M. A., Bollinger, J. M. & Rowan, P. J., Dec 1 2017, In: Journal of Law and the Biosciences. 4, 3, p. 542-564 23 p.Research output: Contribution to journal › Article › peer-review
Open Access -
2016
Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel
Messner, D. A., Al Naber, J., Koay, P., Cook-Deegan, R., Majumder, M., Javitt, G., Deverka, P., Dvoskin, R., Bollinger, J., Curnutte, M., Chandrasekharan, S. & McGuire, A., Sep 1 2016, In: Applied and Translational Genomics. 10, p. 19-24 6 p.Research output: Contribution to journal › Article › peer-review
Open Access16 Scopus citations -
Patients' views concerning research on medical practices: Implications for consent
Weinfurt, K. P., Bollinger, J. M., Brelsford, K. M., Crayton, T. J., Topazian, R. J., Kass, N. E., Beskow, L. M. & Sugarman, J., Apr 2 2016, In: AJOB Empirical Bioethics. 7, 2, p. 76-91 16 p.Research output: Contribution to journal › Article › peer-review
Open Access15 Scopus citations -
Physicians' perspectives regarding pragmatic clinical trials
Topazian, R., Bollinger, J., Weinfurt, K. P., Dvoskin, R., Mathews, D., Brelsford, K., DeCamp, M. & Sugarman, J., Aug 2016, In: Journal of Comparative Effectiveness Research. 5, 5, p. 499-506 8 p.Research output: Contribution to journal › Article › peer-review
Open Access8 Scopus citations -
2015
Demographic differences in willingness to provide broad and narrow consent for biobank research
Ewing, A. T., Erby, L. A. H., Bollinger, J., Tetteyfio, E., Ricks-Santi, L. J. & Kaufman, D., Apr 1 2015, In: Biopreservation and Biobanking. 13, 2, p. 98-106 9 p.Research output: Contribution to journal › Article › peer-review
24 Scopus citations -
2014
Informed consent for exome sequencing research in families with genetic disease: The emerging issue of incidental findings
Bergner, A. L., Bollinger, J., Raraigh, K. S., Tichnell, C., Murray, B., Blout, C. L., Telegrafi, A. B. & James, C. A., Nov 1 2014, In: American Journal of Medical Genetics, Part A. 164, 11, p. 2745-2752 8 p.Research output: Contribution to journal › Article › peer-review
Open Access27 Scopus citations -
Public preferences for the return of research results in genetic research: A conjoint analysis
Bollinger, J. M., Bridges, J., Mohamed, A. & Kaufman, D., Dec 11 2014, In: Genetics in Medicine. 16, 12, p. 932-939 8 p.Research output: Contribution to journal › Article › peer-review
Open Access33 Scopus citations -
Public preferences regarding informed consent models for participation in population-based genomic research
Platt, J., Bollinger, J., Dvoskin, R., Kardia, S. L. R. & Kaufman, D., Jan 2014, In: Genetics in Medicine. 16, 1, p. 11-18 8 p.Research output: Contribution to journal › Article › peer-review
Open Access -
2013
Attitudes about regulation among direct-to-consumer genetic testing customers
Bollinger, J. M., Green, R. C. & Kaufman, D., May 1 2013, In: Genetic testing and molecular biomarkers. 17, 5, p. 424-428 5 p.Research output: Contribution to journal › Article › peer-review
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2012
Public preferences regarding the return of individual genetic research results: Findings from a qualitative focus group study
Bollinger, J. M., Scott, J., Dvoskin, R. & Kaufman, D., Apr 2012, In: Genetics in Medicine. 14, 4, p. 451-457 7 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Risky business: Risk perception and the use of medical services among customers of DTC personal genetic testing
Kaufman, D. J., Bollinger, J. M., Dvoskin, R. L. & Scott, J. A., Jun 2012, In: Journal of Genetic Counseling. 21, 3, p. 413-422 10 p.Research output: Contribution to journal › Article › peer-review
Open Access -
2009
Public Opinion about the Importance of Privacy in Biobank Research
Kaufman, D. J., Murphy-Bollinger, J., Scott, J. & Hudson, K. L., Nov 13 2009, In: American journal of human genetics. 85, 5, p. 643-654 12 p.Research output: Contribution to journal › Article › peer-review
Open Access